eav
New member
- Joined
- Aug 5, 2024
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- QC
- City
- Carignan
Hello,
i am a 47 year old father of three beautiful kids 11-12 and 14 years old and Husband. I've had quite the rough time this past year or so. I got severe Covid, had two pneumonias and was really sick whith high fever that got me spending a week at the Hospital after suffering from anemia. I received three rounds of antibiotics through IV which seemed to clear up my anemia (had only oral antibiotics for my first pneumonia) but i lost about 10 pounds or so. I got multiple CT scans of the lungs which are now all cleared up, i got a CT scan of my pelvic area and organs showed no signs of any cancer. My Hematologist gave me the okay that my blood was back to normal. The diagnosis she had given me was that i got a mycoplasmic bacteria that caused havoc on my immune system and destroyed 50% of my red blood cells . That test ended it up coming back negative and but she said sometimes they are false positves and she still thinks that this was what i got. I've never gotten sick before and maybe had fever three times my whole life. Even when kids were very young and had colds, i would never catch anything. Now, i am catching every germ and getting really sick.
I told my wife about six months ago that i felt i was losing my muscle mass. i've always been someone quite fit. Kind of felt around the ribs and legs things were thinning out but since my hospital stay and having lost 10 pounds, the muscles are not coming back and i feel weaker. Anemia was the theory but my blood is back to normal and still struggling .
We were at the cottage this past week and my daughter noticed that both my calf muscles constantly twitched while resting(they never stop twitching unless muscle is flexed). I've noticed this before but never thought about anything serious, probably ongoing for a year or so. My wife had noticed this to. I'd get time to time calf cramps that would wake me up at night but stretching them out would solve the issue. A few google clicks and now i am here. I've had spine pain with my sciatic nerve really hurting and also pain in the upper spine. I got a scan about 2 years ago showing my l2-l3 and l3-l4 vertabraes were showing signs of slipping and a bit of arthritis was starting. Trying to observe any other systems.
I have an EMG that will be scheduled in a few months, do not have the date yet, my Doctor said it is quite rare for one to have such a bad streak of multiple illnesses in a row but i really do not feel normal. I started working out with my Son and we bought a nice home gym. After a workout, for a couple of days, you'd get sore which is the normal process of your muscles healing but after some benchpress, it took over a week for me to not feel any discomfort and i believe that my back pain started hurting then. I've read up that muscles with ALS do not rebuild themselves and causes musle wasting. This would be my second sympton after the twitching calves that worries me. With ALS, would you get general muscle wasting all over your body?
With no clear diagnosis of my past illness's, with all my organs not showing any forms of cancer or diseases, with most of my immune tests returning normal values, could ALS be the cause of all of this? My grandmother passed away from this disease. She had a severe car accident, was put in a wheel chair and symptoms apparently started shortly after. This was before i was born and my Father has passed away so little details on this. Going for blood work today for TSH, CK and FSC tests, depending on results, this could speed up EMG exam with neurologist. i've read the 2 to 5 year window once symptoms start, if my calves started twitching 6-12 month ago, i'd be in year 2. I know everyone is different, but would more symptoms occur by now? with ALs, would it be normal that both calf muscles would start twitching at the same time? Hoping this is some kind of pinched nerve in the back but i am quite worried.
thanks for reading
i am a 47 year old father of three beautiful kids 11-12 and 14 years old and Husband. I've had quite the rough time this past year or so. I got severe Covid, had two pneumonias and was really sick whith high fever that got me spending a week at the Hospital after suffering from anemia. I received three rounds of antibiotics through IV which seemed to clear up my anemia (had only oral antibiotics for my first pneumonia) but i lost about 10 pounds or so. I got multiple CT scans of the lungs which are now all cleared up, i got a CT scan of my pelvic area and organs showed no signs of any cancer. My Hematologist gave me the okay that my blood was back to normal. The diagnosis she had given me was that i got a mycoplasmic bacteria that caused havoc on my immune system and destroyed 50% of my red blood cells . That test ended it up coming back negative and but she said sometimes they are false positves and she still thinks that this was what i got. I've never gotten sick before and maybe had fever three times my whole life. Even when kids were very young and had colds, i would never catch anything. Now, i am catching every germ and getting really sick.
I told my wife about six months ago that i felt i was losing my muscle mass. i've always been someone quite fit. Kind of felt around the ribs and legs things were thinning out but since my hospital stay and having lost 10 pounds, the muscles are not coming back and i feel weaker. Anemia was the theory but my blood is back to normal and still struggling .
We were at the cottage this past week and my daughter noticed that both my calf muscles constantly twitched while resting(they never stop twitching unless muscle is flexed). I've noticed this before but never thought about anything serious, probably ongoing for a year or so. My wife had noticed this to. I'd get time to time calf cramps that would wake me up at night but stretching them out would solve the issue. A few google clicks and now i am here. I've had spine pain with my sciatic nerve really hurting and also pain in the upper spine. I got a scan about 2 years ago showing my l2-l3 and l3-l4 vertabraes were showing signs of slipping and a bit of arthritis was starting. Trying to observe any other systems.
I have an EMG that will be scheduled in a few months, do not have the date yet, my Doctor said it is quite rare for one to have such a bad streak of multiple illnesses in a row but i really do not feel normal. I started working out with my Son and we bought a nice home gym. After a workout, for a couple of days, you'd get sore which is the normal process of your muscles healing but after some benchpress, it took over a week for me to not feel any discomfort and i believe that my back pain started hurting then. I've read up that muscles with ALS do not rebuild themselves and causes musle wasting. This would be my second sympton after the twitching calves that worries me. With ALS, would you get general muscle wasting all over your body?
With no clear diagnosis of my past illness's, with all my organs not showing any forms of cancer or diseases, with most of my immune tests returning normal values, could ALS be the cause of all of this? My grandmother passed away from this disease. She had a severe car accident, was put in a wheel chair and symptoms apparently started shortly after. This was before i was born and my Father has passed away so little details on this. Going for blood work today for TSH, CK and FSC tests, depending on results, this could speed up EMG exam with neurologist. i've read the 2 to 5 year window once symptoms start, if my calves started twitching 6-12 month ago, i'd be in year 2. I know everyone is different, but would more symptoms occur by now? with ALs, would it be normal that both calf muscles would start twitching at the same time? Hoping this is some kind of pinched nerve in the back but i am quite worried.
thanks for reading
