nicolettelady
New member
- Joined
- Jul 24, 2017
- Messages
- 1
- Reason
- CALS
- Diagnosis
- 07/2017
- Country
- RS
- State
- RS
- City
- Belgrade
Hello all. This is my first visit to this forum and I'm badly need of some caregiver support. I am currently in a foreign country taking care of my aunt who is diagnosed with Motor Neuron Disease and Dimentia. She cannot speak, can barely swallow, and is starting to lose the ability to walk. Her mind is there sometimes, but other times she is practically hysterical and I don't know why or what to do about it. She is unbelievably restless which I think is the worst part because I never get rest. It is hard not to get frustrated sometimes. I have some help from friends/family but that only goes so far. I am the only one physically taking care of her. Any tips on dealing with this terribly awful disease? I am feeling a great burden and I'm at wit's end. Thank you.