- Joined
- Oct 1, 2023
- Messages
- 15
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- UK
So around two months ago, 4 september. I just got back from holiday and I had a stomach virus and. The stomach virus was causing constant diarrhea. And around this time we also moved into a new house, so I was no longer working from my current work from my work desk I was working from a sofa my posture was terrible.
Now I had. Around this time also start again pins and needles in. My hands. Which I know is not a symptom of als.however, it would come when I would use my phone too much, my screen time is around 8 hours per day, and I don't exactly sit in the best posture.
Around this time also, also, I started getting muscle twitching in my legs and calves only just calves. And this would only this would only happen when I was lying down or sitting in a chair, I didn't get woken up, it wasn't affecting my sleep, and it was. quite infrequent, Since then, with physio therapy and private physio. My neck had cleared up. And my hands weren't causing me any issues. Except from if I was on my phone for too long.
The issue I do have, however, is the twitching in my calfs has not gone. It has now been over two Months. And, I Do. Not, Understand why the twitching has not left, I do not have clinical weakness, and I do not feel I. Have, atrophy, Because Even though I feel like my left leg is slightly small on my right. Even though I am left leg, I think this may be due to anxiety. And finding differences. When there is not a massive difference, my mom had to look very close in order to spot the difference.
My strength in the gym in my legs and calves still seems fine. My walking seems fine and I have not had any stumbles or trips. However, the twitching is just not going, and I still do, if I am on my phone for too long. Have. Problems. With my. Hands.
I'm a 31 year old male from the UK. The reason why this is so worrying for me is due to the fact that I had a great uncle. He died from mnd disease. And my father. Also had motor neuron disease from which was bulber mnd I do not, however, myself have any symptoms in terms of slurred speech or twitching in my Jaw or Face.
My fathers company spent a lot on his treatment during this time and he was flown out the country for stem cell / treatments etc in Zurich was seeing some of the best specialists etc this is what my mum said about this.
“My father died of MND and his uncle before him (no previous family ties) I recently spoke to my mother about this who said that my father was very worried about passing this on to his children
She said that when tested it wasn’t genetic he was just unlucky would this be a common phrase to say that the familial link would not be present for his children going forward”
He was diagnosed in 2012
I am wondering what people think this potentially could be which is causing it And what people would recommend to do going forward.
I did have two IV drips for a few days which reduced my twitching 2 days afterwards ( not straight away) for few days but then it would return I understand this may be a placebo etc
I would say that my anxiety is very high to the point in the faqs I am researching this every day looking on forums effecting relationships and also loosing my appetite feel like I have a dark cloud over me
Sorry if this doesn’t make much sense I have tried to be as thorough as possible
I forgot to add I also had Covid in this 6 week period I imagine this could be quite important to add
Now I had. Around this time also start again pins and needles in. My hands. Which I know is not a symptom of als.however, it would come when I would use my phone too much, my screen time is around 8 hours per day, and I don't exactly sit in the best posture.
Around this time also, also, I started getting muscle twitching in my legs and calves only just calves. And this would only this would only happen when I was lying down or sitting in a chair, I didn't get woken up, it wasn't affecting my sleep, and it was. quite infrequent, Since then, with physio therapy and private physio. My neck had cleared up. And my hands weren't causing me any issues. Except from if I was on my phone for too long.
The issue I do have, however, is the twitching in my calfs has not gone. It has now been over two Months. And, I Do. Not, Understand why the twitching has not left, I do not have clinical weakness, and I do not feel I. Have, atrophy, Because Even though I feel like my left leg is slightly small on my right. Even though I am left leg, I think this may be due to anxiety. And finding differences. When there is not a massive difference, my mom had to look very close in order to spot the difference.
My strength in the gym in my legs and calves still seems fine. My walking seems fine and I have not had any stumbles or trips. However, the twitching is just not going, and I still do, if I am on my phone for too long. Have. Problems. With my. Hands.
I'm a 31 year old male from the UK. The reason why this is so worrying for me is due to the fact that I had a great uncle. He died from mnd disease. And my father. Also had motor neuron disease from which was bulber mnd I do not, however, myself have any symptoms in terms of slurred speech or twitching in my Jaw or Face.
My fathers company spent a lot on his treatment during this time and he was flown out the country for stem cell / treatments etc in Zurich was seeing some of the best specialists etc this is what my mum said about this.
“My father died of MND and his uncle before him (no previous family ties) I recently spoke to my mother about this who said that my father was very worried about passing this on to his children
She said that when tested it wasn’t genetic he was just unlucky would this be a common phrase to say that the familial link would not be present for his children going forward”
He was diagnosed in 2012
I am wondering what people think this potentially could be which is causing it And what people would recommend to do going forward.
I did have two IV drips for a few days which reduced my twitching 2 days afterwards ( not straight away) for few days but then it would return I understand this may be a placebo etc
I would say that my anxiety is very high to the point in the faqs I am researching this every day looking on forums effecting relationships and also loosing my appetite feel like I have a dark cloud over me
Sorry if this doesn’t make much sense I have tried to be as thorough as possible
I forgot to add I also had Covid in this 6 week period I imagine this could be quite important to add
Last edited by a moderator: