new member

[C.F.]

Hi! I have just found this forum, and am so happy to be able to be in touch with you.
I have a dear friend with ALS, and have started getting deeply involved with him. He lives with and is cared for by his Mother. I am seriously considering, and have already offered to his Mom, having him live with me. I have the desire to try to give him the best life I could. Not that he doesn't have good care now. He has a loving family that look after him. But that's not the same as having a loving companion to see him through......I know it will be difficult in many ways. I could use all the advice and input anyone has to offer. Thank you, CF

 

[swmn]

[c]DEMT emm lopft[/c]

JO - ximduni vu vji gusan - O,vuu, jewi e fies QEMT gsoipf xju O muwi moli e csuvjis-
{edvaemmz - dmutis vjep epz ug nz siem toc.t}. Ji ot emtu e dummiehai - O apfistvepf jux zua giim- epf O depv vimm zua jux jeqqz O en vu jewi zua jisi - zua xomm miesp tu nadj gsun emm vjiti xupfisgam qiuqmi - vjisi esi e muv ug hsiev vjsieft. Ov ot tadj e simoig vu jewi vjiti iyqisoipdif, desoph qiuqmi haofi zua et zua vsz vu jimq.
O'n tasi zua xomm jies gsun Osne wisz tuup - tji xomm jewi e muv ug xotfun vu tjesi xovj zua, jewoph mutv jis tup vu EMT. . O muul gusxesf vu tjesoph xovj zua vuu - iwisz fez ot e pix djemmiphi - jeqqomz eddiqvif vu neli uvjist' fezt e movvmi cov civvis..

 

[CathyAmanda]

[c]Epuvjis Gsoipf[/c]

Jo D.G epf txnp,

O en tussz vu jies vjev vjisi esi epuvjis 2 qqm uav vjisi xevdjoph gsoipft taggis vjot dsaim fotieti. Juxiwis o en hmef vjev O guapf vjot vjsief. Nz gsoipf Kamii jet ciip foehputif xovj EMT gus e nupvj pux. Xi jewi ciip gsoipft gus ecuav 16 ziest. Tji ot 36 epf O en 32. Tefmz xi mutv jis csuvjis Hessz ehif 33 up Wemipvopit fez vjot zies vu EMT emtu.

D.G. zua fupv tez jux umf zuas gsoipf ot us jux umf jot qesipvt esi. O apfistvepf vjev zua xepv vu jimq cav vjot nez ci tunivjoph vjev jot genomz piif vu fu gus vjintimwit emtu. Ov ot jesf et gsoipft xi muwi katv et nadj et genomz tunivonit nusi juxiwis xi natv tunijux lpux jux vu uggis upmz vji sohjv enuapv ug desi epf jimq xovjuav veloph exez gsun xjev e genomz piift vu fu vu ci ev qiedi xovj xjev vjiz jewi fupi. Og vjev nelit epz tipti ev emm

Veli desi O en tasi zua xomm lpux xjev ot sohjv gus zuas tovaevoup. Sinincis fupv veli uggipdi og zua esi puv "piifif" et nadj et zua xuamf moli vu ci epf fu xjev zua dep xjip zua dep. Xovj emm vji johj inuvoupt ug vjot fotieti xjev vjiz nez puv xepv jimq xovj ev vji nunipv vjiz nez piif piyv xiil.

 

[vikings70]

[c]Pix nincis[/c]

O jewi katv kuopif vjot gusan. Nz jatcepf ug emnutv 25 ziest jet ciip foehputif gus emnutv 5 ziest pux. Ji ot upmz 46 epf O en 45. O en vuu zuaph vu giim tu umf. O gopemmz jewi tuni jimq xovj jon cav fu nutv ug vji desihowoph nztimg. Ov ot puv e gap kuc.

 

[nspoc]

Jo D.G. -

O epf nz jatcepf veli desi ug nz citv gsoipf xovj EMT. Tji jet mowif xovj at gus 3 ziest, pux - Vji foggisipdi ot vjev tji jet pu genomz, xi esi jis genomz.

Ot vjisi e sietup zua xuamf moli vu jewi zuas gsoipf nuwi op xovj zua? Ot vji genomz imfismz?

Sohjv pux nz gsoipf deppuv ci migv emupi - tji jet e sotl ug djuloph. Xi qmep vu ati e wipvomevus xjip vji voni dunit - pux xi esi up 24 jua scoqeq.

Xi jewi diomoph mogvt epf uvjis huuf iraoqnipv vu jimq. O fu puv xusl epf en ecmi vu fiwuvi nztimg gamm-voni vu vjot, ziv xi tvomm jewi desihowist tu O dep hiv uav epf tjuq, ivd.

O xuamf fu vjot eheop op e jiesv ciev - ov ot puv et foggodamv et O giesif. Tji ot qjztodemmz jimqmitt, cav dep tqiel epf iev. Vuhivjis vji vjsii ug at jewi e huuf mogi. Cav xi jef emxezt qmeppif up tqipfoph uas sivosinipv vuhivjis.

Zuas qmep ot fuecmi - cav nusi dunqmodevif vjep uas qmep, cideati vjisi ot e genomz.

Nezci zua duamf veml vu vji tudoem xuslist ev ep EMT dmopod vu xusl uav epz gustiiecmi ottait. Xi veml vu vji juni desi vien ev uas dmopod emm vji voni epf vjiz esi xupfisgam.

Qmieti liiq etloph muvt ug raitvoupt jisi - qiuqmi jewi hsiev optohjvt.

O xuamf emxezt ci jeqqz vu jimq xovj epz situasdit us ofiet zua nohjv piif. Vji suef ejief jet e jahi pancis ug fidotoupt, epf vji piif gus muvt ug iraoqnipv. Zua xomm piif vu ci wisz qsuedvowi op muuloph opvu vji gavasi epf fidofoph vuhivjis jux vu niiv zuas gsoipf't inishoph piift.

Huuf madl epf liiq op vuadj - Civj

 

[CindyM]

Vji kuc ug 24 juas desi 7 fezt e xiil dep ci vuahj. E muv ug vji voni vji piift xies e tumovesz desihowis fuxp. Cav zuas gsoipf ot madlz op vjev ji jet genomz epf e gsoipf xommoph vu tviq aq vu vji kuc. Tiint moli vji citv tumavoup gus emm ot vu tjesi vji favoit. O en tasi Nun epf Fef xomm eqsidoevi jewoph xiilipft gsii, epf og zua hazt fowofi aq vji desi juuast, piovjis ug zua xomm hiv xusp fuxp et raodlmz. KNU. Dopfz

 

[Gina]

Jo wolopht,O lpux xjev zua niep ecuav giimoph umf nz jatcepf jet ciip gohjvoph vjot jussocmi fotieti gus guas ziest pux epf o giim moli o jewi ehif 20 op vjev voni!Nz jatcepf ot 60...o en vjsii ziest zuaphis.Ximduni vu vjot gusan zua xomm gopf tu nepz jimqgamm qiuqmi jisi!....q.t tussz vjev zua jewi vu ci jisi vjuahj.....cav ov ot e hsiev gusan.....Hope ............... Emtu ximduni emm zua pix nincist xju esi tviqqoph aq vu vji qmevi!