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new member

  1. B

    Not sure if I should be worried or not...

    Hello all. I’ll start off by saying Happy New Year and I hope everyone has a joyful evening. I’m a new member to this forum but I’ve been reading post after post as a guest. I’m a 21 year old female who has been having worrisome (to me) symptoms. I’ll admit to everyone I am somewhat of a...
  2. I

    Als?

    Dear all I am a new member worried that I have ALS. I started having swallowing problems 3 months ago and recently leg weakness with twiches in legs arms shoulders and back. OGD and nasal laryngscopy were normal as well as MRI Brain and spine apart from c 5 6 stenosis. I'm dreading the...
  3. R

    New member looking for support prior to EMG

    Hello everyone, 38 yo here who was in great shape until he realized his right arm progressively became weaker, from lifting 30 lbs easily to not being able to lift 12lbs. Fasiculations normally appear after strenous activity, sometimes at rest too. Thankful to still have grip strength and able...
  4. MarieLaure

    clothes and autonomy

    hello everyone, as a new member I thought I might contribute by sharing a fashion tip that can help men who can walk but can't use their hands or arms : my father has been wearing a kilt for a few months and that enables him to go to the loo without having to ask for help and to be elegant in...
  5. S

    hello

    im from Tyne and Wear N.E England im a past carer of my mam(mom) she was diagnosed with Pseudo Bulbar Palsy then A.L.S in 1997 died 2000 . life is still as though im waiting for her to come home . :cry:
  6. J

    Sacred about symptoms and hoping to get feedback

    Hi everyone, I'm a new member. This forum has been very helpful for me in recent weeks, and I was hoping to get some insight on my symptoms. I apologize in advance for the long explanation: My symptoms started in early November 2017 when I noticed my upper lip began to twitch. It also felt...
  7. C

    New member, help with itch

    Hello to all! I am a 42 year old caregiver of my MIL with ALS. Recently she has been experiencing a lot of itching in her diaper region and her legs. mostly the waist, and where the diaper rubs most. We have tried diaper rash creams, hydrocortisone creams, and benadryl. Does anyone know of...
  8. K

    New Member from U.S.

    Hi, I'm a new member from Tennessee. My 34 year old son was diagnosed with ALS almost two years ago. He has a beautiful wife and two young children. I help provide care for my son and his family as often as they need me. It's difficult as a mom to watch my son progress but I'm trying to be...
  9. S

    Concerned

    Hi everyone, first of all I want to say to those of you who are diagnosed or are caring for someone who is, you are fantastic. Your knowledge and experience are helping a lot of people cope with various issues. Now to my concern. For a week or so, I have been experiencing fasciculations of a...
  10. B

    New Member

    Hello. I’m a leg gal (i.e lower limb onset). I was diagnosed a year ago, but the first symptom was more than four years ago, when, after a fall, my swollen ankle didn’t heal right. Turned out to be a drop foot. I went from walking with a cane, to getting a brace, a walker and finally a...
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