Could this be ALS?

[Mamabear1792]

Hi it’s been a while since I last posted. I have been still progressively. Getting worse I recently had an another opinion at st Luke’s in kc mo. I had a EMG on only my leg muscles it was very painful the neurologist wouldn’t say yes or no to ALS. Said he wanted to schedule me for my arms next the reason for all this is cause of muscle weakness, twitching, atrophy, breathing problems for two years now. Still undiagnosed I wasn’t having much weakness at before the emg but after I have been having extreme muscle weakness all over even in the muscles that weren’t tested and bad cramping pain with worse atrophy in the hands. Is it possible the emg could cause nerve and muscle damage really worried could it make you progress more. ? Sorry for the bad English and long post thanks

 

[ShiftKicker]

Hello there-

You've got a pretty extensive posting history here. Each time we've provided feedback and recommended you consult with your doctors because what you have reported and the timeline does not seem to fit the profile of ALS. Your doctors have the ability to examine you in person and provide you direct feedback about their findings. They also have a baseline from which to measure any changes. Each EMG you've received so far has not shown any signs of the pattern that indicates ALS.

There are many reasons for weakness, so focusing on ALS is not a good idea. If you feel there have been changes since the last time you've visited your doctor, please return to them so they can see what you are speaking of. You've seen a few specialists- what have they indicated with regards to what might be the trouble?

To your question about EMGs causing nerve and muscle damage- no, they do not.

Prior threads so people can see what has been discussed already, and what your experience has been so far.

Could this be ALS

Hello all I’m new here would love too know if my symptoms are from ALS I’m 29 I have been having twitching muscle cramps fatigue of my muscles just doing simple things tired my muscles out I have weakness all over I been having weak neck like it leans forward hard hold my head up I have had mri...

www.alsforums.com

Could this be ALS?

first of all please excuse my English language. I posted on here a while back. I was last seen in ALS clinic back in July. clinical exam was okay at the time .I was post to have a second EMG schedule but he said no .since clinical exam was okay .first EMG was in March but I’m scheduled for new...

www.alsforums.com

Could this be ALS

Hi I have posted before. But my symptoms have progressed a lot. I have muscle weakness essentially everywhere . With twitching. Muscle wasting and I have split hand sign I read that is the physical early signs of ALS. I was seen by ENT doctor yesterday who said I had mild twitching in my tongue...

www.alsforums.com

Could this be ALS?

I have posted few times before. Sorry for posting again. I have muscle weakness, twitching, muscle atrophy, bad breathing problems. And I have new symptom that feels like my muscles. Are been paralyzed. They are extremely weak very weird weakness feeling. Can barely move them I know longer have...

www.alsforums.com

 

[lgelb]

You have a right to the latest EMG report, which you can post here, omitting your identifying details. That would help us better respond.

An EMG cannot make weakness worse.

 

[Mamabear1792]

Sorry for the late response I’m still feeling very weak and fatigue. Like I’m losing failure in my hands. But here my recent emg it was only on the leg muscles. He wanted to do legs first and arms later. But he said he couldn’t say yes are no too ALS/mind at this time what do you think? Thanks for your time

 

[Mamabear1792]

They unfortunately don’t have an answer it’s getting really frustrating. But I feel like it’s pointing to ALS all my symptoms are physical. Funny thing is I don’t have no anxiety. And they don’t think so either but they’re not sure what else to do. Other than that the only thing I have been diagnosed with is Sjögren’s syndrome. But lot of people say it only causes dry mouth and eyes my rheumatologist claims it can cause a lot of other neurological symptoms so idk .

 

[lgelb]

Sjögren's indeed can cause many neurological issues. Read up on that here. Your EMG says no ALS and your report of issues does not match up with it. No idea why a doc would hem/haw on that, especially given your longstanding anxiety about ALS. So I'm not sure you're interpreting that feedback correctly.

I would follow up with a rheumatologist who can help you learn more about and address whatever is in fact Sjögren's-related.

 

[Clearwater AL]

Mammabear... you have normal EMG/NCS. Period.

It's really clear your in denial concerning Health Anxiety.
("But I feel like it’s pointing to ALS..." )
(You've posted 14 messages getting many many replies
from extremely ALS knowledgeable members.

It's not ALS. But other issues your doctors can address.
I hope the path to a determination comes soon so it
can be resolved or managed.

Really no need to post anymore until you get a clear
diagnosis. Help yourself... stop reading about ALS,
old threads here and anything ALS related on
Dr. Google.

Hope your issues with your other doctors get you to
back to a normal healthy life.