work

  1. D

    Tobii user needs glasses

    Tobii rep said bifocals with line don't work well with their eyegaze technology. My 50 year old eyes need help. Have any of you used progressive lens glasses with a Tobii? How was your experience? Do any of you have advice?
  2. P

    Waiting and worrying

    I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...
  3. kitkat

    Choices

    My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...
  4. R

    Worsening Symptoms and Second EMG

    Previous thread: Terrified Bulbar or Limb Onset? Varying Symptoms Sorry for posting again, but I've been having daily crying spells. I've tried to stay off the internet researching my symptoms, since the last time I posted my "Central Sleep Apnea" has seem to resolve after a few rounds of...
  5. E

    Won't go to the Hospital Bed!

    Cals here. Husband dx in 2013. For the last two years, he has lived in a recliner (sleeping there). Of course, goes to the power chair when need be. But, now he has zero neck muscles and needs suctioning several times a day. We have a wonderful hospital bed with all the bells and whistles...
  6. T

    tricks against fears and anxiety

    Dear all. I've been caught into a depression spiral lately. I'm quite stable symptomwise as for now but I'm taking a heavy beating mentally. The most challenging moments are dusk and mornings just after waking up. There creep the worst thoughts of any day: anger, 'why me', mediations about my...
  7. S

    My Dad was diagnosed a year ago and I’m looking for some support

    Hello all, My father was first diagnosed with lower motor neuron ALS roughly one year ago. He got the official diagnosis in September 2018 when they were finally certain that it was not CIDP. Within the week my Dad was diagnosed, I accepted my first job out of graduate school and moved 2 and a...
  8. S

    We are stuck and need advice

    I have had 2 accidents now and I just dont understand how it's not ALS related. Both now I have been in the bathroom on time but as soon as I see the toilet I cant hold it anymore and it all comes out. Is this normal? Plus my hair is so greasy and my hair on my head and eyelashes are getting...
  9. L

    Anxiety and Corcern over recent symptoms

    First off I’d like to say thank you for the recent acceptance into the community, I have so much respect for all of you who are fighting this terrible disease. I want to start out by saying that I am a 26 year old male who has been healthy relatively my entire life. Lately I have been having...
  10. KarenNWendyn

    The newlywed couple

    A newlywed couple moves into their new house. One day the husband comes home from work and his wife says, "Honey, you know, in the upstairs bathroom one of the pipes is leaking, could you fix it?" The husband says, "What do I look like, Mr. Plumber?" A few days go by, and he comes home from...
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