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My mother has ALS and is able to only move her eyes, with some minimal movement of her left hand. She has been using a Tobii Dynavox to communicate. It has never been easy for her, but she has made it work. In the last few days, she has had more and more difficulty typing letters, such that at...

On his first clinic day after diagnosis my dad saw a psychologist who asked him to model how he saw himself in a sort of clay or children doth sort of thing. At the time he could still move his hands a bit but not all of his fingers. He was surprised to see that his work made him think of...

Hello, I am a 23 year old male and Ive been having 24/7 muscle twitches on both of my legs ( right leg a bit more than my left). I think it all started 3+ months ago, maybe even longer back but thats when I first noticed them. I feel like since I noticed them and constantly thinking about them...

As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...

I’m so sorry to be posting here, I just feel so nervous and can’t get into the neuro for a few months. Thank you for taking time to read this. I have had muscle weak in my right arm since November to the point it’s hard to lift my arm to brush my hair. I now have it in my left arm as well, also...

I really didn't want to post on here because I know those confirmed with this horrific disease have alot more on their plate. But I also recognize it is a great resource with alot of Knowledgeable people. A little about me, 42/m very active and big into fitness and bodybuilding most my life...

Hello everybody, I have a question that I felt like couldn't be answered in the Stickies. For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the...

I found these on line. Enjoy. Today at the bank, an old lady asked me to help check her balance. So I pushed her over. I bought some shoes from a drug dealer. I don't know what he laced them with, but I've been tripping all day. I told my girlfriend she drew her eyebrows too high. She seemed...

Part 3 is here with links to previous https://www.alsforums.com/forum/other/40721-making-things-easier-part-3-a.html Part 4 is here https://www.alsforums.com/forum/other/42231-making-things-easier-part-4-a.html I like to revisit this topic periodically for several reasons. I do think this is...

Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...