work

A newlywed couple moves into their new house. One day the husband comes home from work and his wife says, "Honey, you know, in the upstairs bathroom one of the pipes is leaking, could you fix it?" The husband says, "What do I look like, Mr. Plumber?" A few days go by, and he comes home from...

I posted two years ago but was unable to post on that thread but it had been closed. During the time between then and now for the most part I was able to move on from my fears of ALS. However that has changed recently as I have developed a mild slur, not noticed by normal folks but was...

My husband, Frank, has had increasing neck flexion (chin resting on chest) and tilt to the right. His head is now so far forward that the wheelchair headrest supplies no support. He has a neck brace but even this no longer helps. I am applying heat and he is taking extra strength Tylenol with...

Hi im just looking for some advise , My son in law is 26 was very fit caring for severely disabled ppl for the last 7 years. About a year ago he started feeling vibrations in his legs but was still getting around. Over the last couple of months it has become where he isnt managing to stand...

Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...

While this is usually used in reference to where I sit at ball games, I have issues with my nose bleeding or there is blood when I blow my nose. I use a bipap at night and more during the day. Yes I have a humidifier attached to the bipap. Is this just a thing that goes with bipap or has someone...

Hi Guys, So I finally had my doctors appt today. She had no concerns whatsoever , she didn’t even refer me to a neuro . All she did was a neuro exam and I passed fine . She also ordered blood work but said that looking at my health I should be absolutely fine and she has no worries about ALS or...

:smile: It has taken some time, but finally finished one project! Over the years, after purchasing several sets of photos from each roll of 35mm color film, I had lots of flowers, nature and photo-art I created left over. So, I turned them into greeting cards. I mounted them on colored...

My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing. We have been discussing living arrangements as her mobility and breathing decline. Other pALS out there, what did you decide? Did you...

This possible alert goes to Veteran Members and other members here too. This morning I received a phone call from a TriAlliance Community Service (I think that was correct name) saying the VA referred me to them. I don’t think the VA refers their patients to civilian services. Here’s how the...