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  1. J

    Still here thanks to RCH4

    RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...
    • jennyinfrance
    • Thread
    • ability age als clinical clinical trial cost drugs edaravone fda free information neurologist patientslikeme progression riluzole support treatment treatments trial work worldwide
    • Replies: 405
    • Forum: General discussion about ALS/MND
  2. N

    23 year old worried about ALS

    HI everyone, I did read the sticky posts before starting this post, but I'm just a nervous wreck and I was wondering if someone could enlighten me regarding my symptoms. About a week ago My right index finger and thumb started twitching. It won't stop. Its like once every minute or so every...
    • Newtie
    • Thread
    • als als do i have it anxiety brain finger fingers foot health life meds mri stress student symptoms tests thumb twitches twitching wanted weakness work worried worried about als
    • Replies: 3
    • Forum: Could this be ALS?
  3. C

    Left bicep is soft now :(

    Time to go back to the docter :( hello guys its been a while since I have posted here. Most of you know that my symptoms started around may of 2015. My legs feel like they are getting weaker but I'm not sure if its in my head or real weakness. I have been feeling off balance while...
    • Chiffonrayburrel
    • Thread
    • arm atrophy back balance coconut oil confused fell hope hours ice muscle muscles oil sleep symptoms weakness work
    • Replies: 4
    • Forum: Could this be ALS?
  4. Q

    Body stiffness

    Hi, I am a caretaker for my mother and I wanted to ask if it’s normal that my mother can’t stay in one position. For example, every 30 minutes she request to be transferred from her wheelchair and to the recliner. This is throughout the day and night and it’s putting a lot strain on the...
  5. M

    Living with ALS

    I'm still not sure if I want to be a member of this club...I've been hanging around this site reading the threads and trying to find a reason I shouldn't be here. I'm for sure in denial but I may need advice, friendship so ... just in case I wake up from denial, I thought I'd join. :shock: I am...
    • marianne50
    • Thread
    • advice als arm atrophy clinic cramping denial diagnosed emg family life manual mmn mnd mri muscle muscle twitching neurologist progression stress symptom tests twitching weakness work
    • Replies: 12
    • Forum: New members
  6. J

    Advice please....

    Hi – male aged 47, here my history is below, would be very grateful for some input. For just over 2 years (since Sept’15) I’ve had fasciculations – started suddenly in my calves one day. They have been constant there over the 2 years and have spread – I get them on my back and sometimes arms...
    • JimmyF
    • Thread
    • advice als als? atrophy back balance cramps emg exercise fasciculations fingers mnd nose pain pressure shoulder swallowing swelling symptoms testing twitching voice work wrist
    • Replies: 1
    • Forum: Could this be ALS?
  7. A

    Symptoms?

    Hi, A few weeks ago I searched causes for "twitching" on Google. I have been experiencing some twitches in my thumb and calf. Every day since then, has been a blur. ALS popped up as a potential cause and therfore I read into it. I have found that I seem to have other symptoms as well. I...
    • Anvbgr
    • Thread
    • advice als atrophy diagnosis eye life muscles neurologist reading symptoms symptoms? test thumb twitches twitching vitamin d weakness work
    • Replies: 5
    • Forum: Could this be ALS?
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