My husband, Rick, not only was recently diagnosed with ALS, but is fighting to save his right leg from an accident in July. Would you believe that we went to a church picnic where a homemade cannon was set off for our entertainment, and it malfunctioned and blew up backwards into the crowd...
As Veteran's Day approaches, The ALS Association's Advocacy Department is launching a letter-to-the-editor campaign to raise awareness of the connection between ALS and military service and build support for our cause on Capitol Hill. Therefore, we have prepared a sample letter that you can...
My husband, a 25 yr. police officer now retired, and a Vietnam Veteran was diagnosed on 10-04-07 with ALS.... they told him 3 yrs at best... I am so broke up as he is just begining his retirement. I am wondering how others tell their families the "news" ! ! and do I continue to work to...
My name is Denise. I am sole caregiver to my husband Ronald who has been diagnosed for 5 years with ALS. His was bulbar onset. He is now total care. He amde the choice for no PEG or vent. or other life support. So needless to say it has been hard to deal with at time. He is veteran, 58 years old...
Hi all--
I have been away from the site--my husband Shannon died on July 28th, 2007, here at home with me and hospice nurses, as he wanted it. I had the chance to post this news on a couple other sites but am just getting back here. I dont know what I would have done without these online...
Hi to all! I have a question, my dad had to quit working in January 2007 due to limb onset of ALS (he was diagnosed in February 2007). He is a Veteran with a Purple Heart and has been unable to get any assistance from the Veterans affairs office. We also applied for his disability in January...
The ALS organization testifies before congress. The Advocacy Department had a hearing earlier this week at Capitol Hil. The ALS association called on Congress to speed ALS drug development and ensure that people with the disease have timely access to new treatment. A 35 year old fatherof...
Just a question that someone may be able to answer.
How difficult is it to get Rilutek through the VA? I have diagnosed of ALS from ALS clinic in San Francisco and an appointment with a VA neurologist next month.
Any info or opinions welcome.
REDNECKCA