veteran

  1. Clearwater AL

    Possible scam alert...

    This possible alert goes to Veteran Members and other members here too. This morning I received a phone call from a TriAlliance Community Service (I think that was correct name) saying the VA referred me to them. I don’t think the VA refers their patients to civilian services. Here’s how the...
  2. K

    PVA/newly diagnosed

    My husband is newly diagnosed and a veteran. We contacted PVA in Houston and PVA filed a claim for benefits. Does anyone know how long this should be taking? Once the claim was filed, the PVA person will not reply to our emails or phone messages. We are new to this and thought PVA would be...
  3. T

    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
  4. L

    Didn't think I would be back

    My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...
  5. F

    Dad died

    Doubt anyone reads this things. Just wanted to mention my Dad passed. Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...
  6. J

    VETERAN Discussion Rating increase R1 to R2

    Looking for specific information on going from R1 to R2 Getting R1 was not hard, just told PVA rep and done R2 seems an struggle. Sent VA Dr Support Form VA FORM 21-2680 Examination for Regular Aid and Attendance, PVA requested letter 2. Got that, put in packet. VA sends me one inch thick...
  7. J

    ALS in US army veterans, official attitude

    hello, can anyone put some light on official attitude of US government: is ALS treated anyhow as a "veteran disease"/is veteran with ALS anyhow different treated, since prevalance of ALS is almost double among veterans. Sorry, I'm from country where war lasted for four years, and nobody ever...
  8. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
  9. M

    Veterans with PLS VA disability

    There are some closed threads on this subject but I am new and need some help. I was recently diagnosed with PLS and am a veteran. I have submitted two letters form neurologists stating that PLS is a variant of ALS. I tried twice to get the VA to grant me disability but they keep denying it...
  10. G

    Survey on Veteran's use of PCs

    This is a survey on computer use (PC, laptop or tablet) by pALS or their full-time caregivers. It’s focus is Microsoft Windows but I need a complete picture, so if you use a different OS, such as iOS or Linux, please select the ‘Other’ Option: Other – No Windows here! The rest of the poll...
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