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REDNECKCA

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Just a question that someone may be able to answer.

How difficult is it to get Rilutek through the VA? I have diagnosed of ALS from ALS clinic in San Francisco and an appointment with a VA neurologist next month.

Any info or opinions welcome.

REDNECKCA
 

Al

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Hi Redneck. We have a lot of Americans on site. I'm surprised no one has answered your post yet. Hang in there.
 

reacree

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Hi Redneck, I am a vet. with recent diagnosed of ALS. I haven't tried to get meds from the va yet, so I can't answer your question. I just wanted to let you know, if you don't, that the va has set up a registry for vets with ALS. You can find a link to the people who are running the registry at the VA's web site.
Good luck, Bob.
 

Brentt

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If you have a problem with the V.A.
try the NORD
NATIONAL ORGANIZATION OF RARE DISORDERS .
I have been receiving rilutek through these guys from the beginning and no snafu .
check with your neurologist they should have a contact or try the als community in your area .
 

Brentt

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I have the phone number of the NATIONAL ORGANIZATION OF RARE DISORDERS (NORD )in case V A affairs isn't working on the rilutek issue .It will require a doctors script for them to supply the meds.But here's the number and good luck .
800 - 459 - 7599
 

Jerry

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Hi Redneck. I was recently diagnosed with als and refered to VA. VA has a catastrophic catagory where you don't have to meet income guidelines. I have my first appointment with VA next month. Although I am on Tricare and get my meds through them, I was told you can get rilutek through VA for about eight dollars a month. (sure beats $900) I will need va help with wheel chair etc in the near future. Hope this helps. Als diagnosed qualifies for catastrophic illness.

Jerry
 

REDNECKCA

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Thanks, People. That May Help.

Redneckca
 
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