I have a question for mostly those with bulbar onset ASL - i am not sure if here is the best place to ask? please direct me to the right board if I am in the wrong place...
a few days ago i asked why dad just does nothing but sleep, and got awesome answers and suggestions.
now it seems that...
Curious to know what kind of positive effect Neudexta may have on speech issues? Does it make it any better? Just holds off progression?
I don't have PBA, and swallowing isn't too bad. It's movement of the tongue when eating and speaking that's the worst of it. I asked my dr. and...
This was brought up in the thread re: B12 shots, and I didn't want to hijack the thread further.
In that thread, we discovered 3 Canadians (myself, Trixi80 and Gorby) all seem to be seeing the same neuro- who is quite conservative in offering treatments and options. Neudexta was brought up...
I just posted my story on "newly diagnosed ".
I am wondering if anyone has tried Neudexta and
If so, what has your experience been?
I currently am taking Rilutek and Zoloft.
My neurologist prescribed the Neudexta
(for speech and swallowing issues),
but with hesitation due to...
My PALS was prescribed neudexta. He doesn't have a feeding tube yet, but has some difficulty swallowing pills. I forgot to ask doc if the capsule could be opened and incorporated into pudding or applesauce. Does anyone know?
It has been a while since I have posted so I wanted to relay a chain of events that may help others in a similar situation or heading toward a similar situation.
My father was diagnosed with ALS in September 2013 at 71 years old. His symptom onset was a year prior with overall weakness...
The dreaded clinic was a real POA (pain in the ass). No big changes, the RT has put me on BiPap, which I will receive next week. My legs and left arm shows more spasticity, so they started me on baclofen. Voice has gotten worse, she wants me to up my Neudexta to 2 times a day, I have been...
Asking for questions to ask doctors…
I posted on your DIHALS re my husband several days ago after his 3rd neurologist referred him back for an EMG with the director of our ALS clinic. (First neurologist diagnosed bulbar-onset ALS in April 2013, sent him for EMG and 2nd opinion with ALS clinic...
rem behavior disorder
I am wondering if anyone has experienced symptoms developing along these lines, because my husband seems an enigma to the 3 neurologists who are passing him around.
A year and a half ago, my husband's speech became notably slurred. I had noticed a tremor in his hand and occasional slurring a...
FVC=69. Peg tube suggested.
I've been taking Neudexta for a week and it has really improved my swallowing-too bad its not FDA approved for that-insurance wont pay for it.
Bulbar and left arm involvement so far. Tongue a little weak.
Was told to stay away from milk because of phlegm production...