neudexta

  1. D

    Delsym?

    My understanding of Neudexta is that the dextromethorphan is what helps PBA. If dextromethorphan is the active ingredient in Neudexta, and quinidine is only there to slow the metabolism of the DM, shouldn't any sustained release form of DM be helpful? Quinidine interacts with other meds that can...
  2. J

    Neudexta

    Hello everyone, I was wondering if neudexta is safe to take for an als patient that doesnt have pba. Ive managed to get the medication from someone in the states. My pals is taking amitriptyline pills and cbd oil both for sleep and to help with mucus problems. she is having difficulty talking...
  3. I

    Generic for Neudexta?

    Three months ago I began taking Neudexta to stop crying at the drop of a hat. At that time, my copay was $120 for a 90 day supply. I tried to refill it today. The copay has increased to more than $1000! With all the other drugs I need to take, I can’t afford to pay that amount for one pill...
  4. I

    Neudexta

    I tried taking Neudexta about a month ago but quit after three or four days because I was taking it with my evening pills and it seemed to cause leg cramps. Anyone else having that issue? I think I may try taking it with morning pills because I do really think it may work for me. I know...
  5. H

    Recently Diagnosed

    I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have...
  6. I

    Nuedexta through a PEG?

    For the second time, I have received a drug sent in a capsule when I can only take drugs through the PEG. This one is for Neudexta. My husband called the mail order pharmacy and after 30 minutes on the phone he was told that Neudexta only comes in a capsule and that I should contact my doctor...
  7. O

    Does Neudexta help speech?

    I ran across an article recently that said Neudexta may improve swallowing, excess salivation, and even speech. Has anyone taken Neudexta and experienced improvement in speech? I did a search and found one post that mentioned alleviation of drooling and improved swallowing but did not...
  8. B

    swallowing rilutek with difficulty

    hello all. i have limb onset, can still eat most things, do not want a PEG yet because I am plump and not losing weight. but i cannot swallow pills. so my caregiver grinds up my neudexta and gives it to me with applesauce and that is fine. but if we try the same thing with rilutek, it makes my...
  9. K

    Help on sourcing Neudexta

    Hi All, My dad has been diagnosed with ALS and currently his speech and swallowing ability is severely impaired. I saw some news on Neudexta providing some bulbar symptoms improvements and was hoping to try it for my Dad who is living in India (I am in UK). I am struggling to find a way to...
  10. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
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