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Hudson

Member
Joined
Jun 21, 2017
Messages
10
Reason
PALS
Diagnosis
02/2018
Country
US
State
New York
City
New York City
I had sought and received useful feedback in June and November 2017. At the time, my neurologist had two possible diagnoses: a type of neuropathy or ALS. I was being treated for neuropathy with IVIG, and -- given my exercise regimen and other information -- commenters thought I did not have ALS.
Unfortunately, by the end of January 2018, my weaknesses had progressed noticeably. My speech was harder to understand; swallowing was more challenging; my right hand and arm were much weaker; my left arm was weaker; other muscle weakness was noticeable; and I no longer run or do the workouts I used to, although I can still walk.
My neurologist changed my diagnosis to ALS in February. I've begun taking Riluzole, Radicava and Neudexta. My symptoms first surfaced in the second half of 2016, so the doctor has suggested that my progression has been relatively slow.
I wanted to thank everyone for their generous advice and to express my appreciation for this amazing forum.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,620
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I am sorry it went this way. Of course, we hoped as you did that MMN was the answer.

Slow progression is good and I hope you benefit from all the meds and it slows even more.

Welcome sadly
 

sassy

Active member
Joined
Apr 22, 2018
Messages
82
Reason
CALS
Diagnosis
02/2018
Country
US
State
RI
City
East Greenwich
Hoping your progression continues to be slow.
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,020
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Hudson,

I remember your posts and hoping that it wasn't ALS. Sorry you're here but very glad your progression has been slow.

I know how hard it is to see yourself slow down. At first, I wondered what I would do without heavy workouts and sports. Now I'm grateful for each day and every friend who comes into my life.

I hope you'll stick around the forum.
 

KarenNWendyn

Moderator
Forum Supporter
Joined
Jul 29, 2017
Messages
3,762
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
I’m sorry you find yourself back here. You’re in good company though. The people here are good and we’ll try to support you as best we can.
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
9,155
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Very sorry to hear the definitive dx, Hudson. We will support you however we can.

Best,
Laurie
 

Hudson

Member
Joined
Jun 21, 2017
Messages
10
Reason
PALS
Diagnosis
02/2018
Country
US
State
New York
City
New York City
Thanks, all. I will definitely stick around the forum.
 

wishmobbing

Senior member
Joined
Dec 5, 2017
Messages
729
Reason
Lost a loved one
Diagnosis
07/2017
Country
DE
State
Germany
City
Stuttgart
Hi Hudson, glad you want to stick around! Just a hefty price you're paying to qualify for this circle.
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Welcome Hudson, post often and we ll git to know ya.!
 

Scotiaspirit

Distinguished member
Joined
Nov 21, 2015
Messages
202
Reason
PALS
Diagnosis
11/2015
Country
CA
State
Nova Scotia
City
Dartmouth
Hudson, welcome to the club nobody wishes to be a member of. Be that it may, this forum is a wealth of information sharing, compassion, and wonderful people. Sorry about your dx. Wishing that your progression is slow, and that your treatments will keep you mobile as long as possible.
 
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