neudexta

  1. N

    dextromothorphan

    Does dextromothorphan, the active ingredient in Neudexta, help with swallowing and voice issues common with ALS?
  2. azwxman

    My Intro

    Hi all, Mark here. Diagnosed on June 2, and got a second opinion from a neuromuscular specialist at University Medical Center (U of A) on the 10th. I'm 58 today, retired Air Force after 20 years of service and lucky me, spent nearly a year in Saudi Arabia during the first Gulf War (and have...
  3. B

    Neudexta Side Effects

    I am really curious if any Neudexta users have had side effects, or difficulty adjusting to it. I started it two weeks ago and have been on two capsules a day for the last week. I have been having headaches, paranoia, and just can't seem motivated to get anything done. It kind of reminds me of...
  4. B

    If i was a horse they'd shoot me

    I had my second ALS Clinic today....and I am just exhausted. My results were as I thought; decline in speech, lower oxygen level, some atrophy in my hands and feet, and weakness in my hands and fingers. I had a different doctor, and liked her a lot better...she actually listened to my concerns...
  5. H

    Neudexta and alcohol

    Anyone here have any experience with drinking and neudexta?
  6. jellis86

    Neudexta versus dextromethorphan alone

    Hi all, I'm probably beating a subject that has been discussed several times....but has anyone had any luck with using dextromethorphan without quinidine? I was taking a teaspoon a day, which is close to 30mg, for a few weeks until my primary Neurologist told me to stop. He said...
  7. J

    Neudexta

    I just wanted to let everyone know that Neudexta is worth a shot if you can get your doctor to prescribe it. I have a noticable improvement in speech, not perfect but much better. I might have started to have some swallowing issues before starting Neudexta(very minor), they are gone now. I had...
  8. M

    Neudexta Trial to help Bulbar onset pALS

    A Neudexta trial to start in Fall of 12 as it looks like the drug may help bulbar-onset patients with their speaking and swallowing. Nuedexta, getting more than emotional? | ALS Therapy Development Institute
  9. Magpuff

    Neudexta

    Anyone out there taking this drug for inappropriate laughing or crying? I don't have those symptoms but my neuro said it would also help with other pre-bulbar issues such as swallowing and speech. Anyone taking it for that reason? The side effects sound scary and the cost is $245.00 per...
  10. Barbie

    What Are You Thankful For?

    Being a Caregiver is so hard...but with this week being Thanksgiving I thought we should all spend a little time to remember things we are still thankful for even with as rough as our lives are these days. So, I am hoping everyone will try to think of one thing they are thankful for this...
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