last days

  1. S

    hi I'm new and reaching out

    dad was diagnosed with mnd late last year, Now he can barely communicate and is mostly paralised. I can only see him every couple of months as I live in a different country. He can;t stay at home because his wife is mentally unbalanced and on a lot of prescription drugs. So He is in a rest home...
  2. H

    Total Dysfunction

    OK...last night I spent the night with my friend who as ALS...I did so to give her husband a little break for sleep. When I arrived at 10pm as her aide was leaving...my goal was to climb into the bed next to her wheelchair and got to sleep. She insisted on communicating and complaining for...
  3. jbaiza

    what is the next step

    Hi my name is Jenny and I am going through the hardest time of my life which is also supposed to be the happiest time of my life...I just got married and recently bought our first home...but there are two major problems in mine and my husbands life...my mother was diagnosed with ALS right before...
  4. G

    Worried again...please, some opinions!

    Hello! I do not know if anyone remember but I posted some messages here 3 months ago! My mainly symptoms: Twitching 4 years (not intense, not continuous, just sometimes), sometimes vague pains... I was putting my worries out of my mind again. But last weeks...so worried again! I keep feeling...
  5. D

    Wrist drop whe I woke up - Very worry

    Hi all again, I have been much better from my anxiety due twitching in the last days, so I forgot it completely and, even better, I did not feel almost any twitching for some days. BUT! Today in the morning when I wake up, I was sleeping on my left side, over my left arm. I watched my hand and...
  6. A

    Hospice Care Abuse?

    My sister has ALS. She was diagnosed about 2 and 1/2 years ago. From everything I have read she may have anywhere from 6 months to 13 more years to live. The only part of her body that she can move is her left hand. I just finished reading "On Any Given Day" written by Joe Martin, a Bank of...
  7. C

    My sister is at peace

    I wanted to update you on my sister and ordinary girls mother. Twila passed so very peacefully last week early in the morning on the 19th. After the the struggle and pain she suffered, her peaceful passing was a blessing to all of us. God was surely with her in her last days and we are so...
  8. D

    Good bye Edna May

    This is Edna May's daughter and I am sorry to say that my wonderful mother passed away two weeks ago. It was fast and she went quitely in my arms. I know this forum was her main source of inspiration to live each of her last days to the fullest and never once complain. She spent many hours...
  9. M

    Dad's Caregiver is not "cutting it".. time for a change?!?

    Hi everyone! My dad was diagnosed last October and has progressed very quickly. He is now using a walker all the time, has a brace for his right leg, cannot speak and is losing the use of his left arm. He chokes constantly and is getting closer to finally scheduling the surgery for a feeding...
  10. J

    A call for advice

    hello all, A close friend of mine has been diagnosed with MND. He has been struck down rapidly and is currently in bed in a hospice. Me and his family would very much like to get him home so he can pass his last days around his loved ones. The house has been set-up for him with a special bed...
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