hunpy66
New member
- Joined
- Aug 19, 2009
- Messages
- 5
- Reason
- Friend was DX
- Country
- US
- State
- NY
- City
- Rochester
OK...last night I spent the night with my friend who as ALS...I did so to give her husband a little break for sleep. When I arrived at 10pm as her aide was leaving...my goal was to climb into the bed next to her wheelchair and got to sleep. She insisted on communicating and complaining for almost 2 hours. I understand as a friend I should listen and be there for her...but we really needed to sleep. We finally got to sleep at 12:30, she awoke 2 times requesting pain meds, and needing the bed pan. She was not very nice to her husband when he was getting ready to leave for work this morning. It's just not good. I am sure that she feels angry, scared, worried, etc. I have attempted to address these issues though most recently she would rather complain and tell me details about disagreements and other things that are occurring. I don't know how the family is doing this. I am exhausted after one night. I can't imagine where this is all going and where she will be spending her last days. Thanks for listening and allowing me to vent.