last days

  1. G

    Worried Again?

    Hello! I'm male and 35 years old. My first visit in ALS Forums was in 2005 when I experienced a lot of widespread twitches (legs, arms, hands, face, back,...)! Between 2005 and 2007 I posted a lot worried with my twitches! I went about 10 times in a ALS specialist and the answer was always the...
  2. A

    Final stages and lingering

    My mom is in her final days and quite possibly her final hours now. She has not eaten anything in 2 weeks and 4 days, stopped drinking 5 days ago, and since then has only had a few bites of crushed ice each day. She has all of the typical signs of end of life - the darkened urine, dark blotches...
  3. K

    The Greatest Man

    The Greatest Man I have ever known joined our savior on October 24, 2011. He had been a fighter most of his life, from the war in Vietnam, to his battle with A.L.S., which took his life. I was with him through his journey and was there when he took his last breath. Although I will miss him so...
  4. arkallen

    A Golden Watch

    Little One can be a touch slow of a morning. But let’s delve into the thesaurus for a moment and refine that description: She can be obstinate, obdurate, refractory, ponderous, intractable and just plain stubborn! Getting her out the door for school on some mornings requires super-human...
  5. S

    Letting them know at work

    Hi everyone, I've written an email to send to the people at work. I want to run it by you first. Suggestions on additions or deletions are welcome. Here goes: A couple of anniversaries A long time ago the baseball legend Lou Gehrig stepped up to the microphone in Yankee Stadium and gave his...
  6. Phil's wife

    nurse says could be last days

    Phil began running a low grade temp Sunday night, his breathing changed to labored and his O2 stats began to go down. Earlier that night he was alert and showing his great personality in conversation. His speech deteriorated completely (from mostly only me being able to understand him to no...
  7. M

    Goodbyes

    I have made very few comments on this forum over the past 18 months. However I have spent many hours reading your stories. My brother Johnny is now in palliative care and is in his last days with us. He put up a hell of a fight - but now we must let him go. It is hard not to feel lost and...
  8. L

    Nervous for the Last Days

    I am so nervous for the last days. I believe we still have at least a year, barring some unforseen circumstance. But am nervous still. We are definately of the living with the disease mentality and not dying of it. We still do as much as the both of us have the energy for. But breathing...
  9. M

    I am getting worried...

    Hi, Lynn has PBP and was diagnosed in June 2008. She became symptomatic in May 2007. She had her PEG inserted 11 months ago and has been very stable and strong until this week. Yesterday she told me her ankles were getting a bit wobbly, her arms and shoulders were getting weaker, and she was...
  10. B

    2,5 years twitching..now excess saliva

    Hi, I havent posted for a while and was just hanging around. I still have only fasciculations going on and off but last days I am experiencing excess saliva. I know that with ALS this is UMN symptom (not just you inability to swallow, but hypersalivation itself is UMN symptom). So of course I am...
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