goodbye

What do I tell my in-laws about their son? My mother in law is 90 and my father in law is 87. We are going up to NY for a weekend for my FIL's birthday and so my husband can see them for the last time. He does not want his parents to know he has ALS since he thinks they will die before he does...

Hi all, Thanks for your words of support and wisdom on the question of stopping eating. My mom weighed all of her options and decided to stop eating. She hasn't had anything to eat or drink since Tuesday night. My partner and our little girl are here with me at my mom's, and my brother and...

I've gained much support and information during the year I've spent with you and that has made our journey easier. My husband died so peacefully and easily last night amid much love. Goodbye and thank you for your company along this difficult road.

Dick passed away July 15th after one year of diagnosed. I want to share my experience with you so you never have to experience what I went thru. I fed Dick breakfast. He went down for a nap and I put his bi-bap on him. He wanted to get up and use the bathroom. He started coughing and then...

My father was diagnosed with PMA when I was a sophomore in high school. Like most teenagers, I had the false idea that we could live forever.. that loved ones would always be there. But as he grew weaker and weaker I realized how wrong I was. Fearful of his passing, I graduated early from high...

My father was diagnosed with a form of ALS when I was a sophomore in high school. Like most teenagers, I had the false idea that we could live forever.. that loved ones would always be there. But as he grew weaker and weaker I realized how wrong I was. Fearful of his passing, I graduated early...

As you know Dick passed away on July 15th. I just wanted to share this with you in hopes it may bring some comfort to all of you. On th 13th Dick and I were talking in the bedroom. He had his bi-pap on and we were having a normal conversation when out of no where he said "My Mother and Father...

We in the ALS chat room received the unfortunate news that Chad-FL has passed away. Yesterday morning he decided with his fiancee and family by his side to remove vent/bipap. This young man (34 years) had barely gotten past a first diagnosed and had just returned from the Mayo clinic to learn he...

Hi, Mike died last night. His son said he died peacefully. I saw him last Saturday, and he asked that I call last Thursday. He didn't want me to come Thursday or Saturday, though; and when I called yesterday, his son told me he's pretty much sleeping now, but it would be fine if I wanted to...

Good afternoon to all, As you might of figured from my "title" I lost my "Chickie babe", my (step) mom. She lost her battle with ALS on Jan. 22, 2007 @ 12:20pm. Mom was three days shy of 20 months living with this disease. I have such a mixture of feelings, sad, relieved, lost and angry...