goodbye

I only found this group last week after my Dad was admitted to hospital to have a P.E.G, sadly he never came home .....He developed cold sepsis at the site of the PEG and deteriorated very rapidly ......The hospital kept him comfortable with Morphine then he asked us to tell them to stop all...

If tomorrow starts without me And I'm not there to see, If the sun should rise and find your eyes all filled with tears for me, I wish so much you wouldn't cry the way you did today, While thinking of the many things We did not get to say. I know how much you love me as much as I love you...

Hi everyone, Well after neuro was convinced it was als the emg showed only fasiculations, no fibrillations or other stuff that they look for (I'm not very technical), I have good news - not als but have been given a "diagnosis" of probable ms which is a much better disease! I hope I can now...

Hi everyone, today i've felt more Hopeless about my brotHer's condition tHan i Have in a long time because He's past His plateau and is now discovering tHat His legs are at about 30% of wHat tHey used to be. but His spirit is just so incredibly inspirational tHat He still convinces me tHat...

:D hi I just recently joined this website, my younger brother (39) was diagnosed with ALS this past year. He is deterating so fast, in one year he has no use of any of his limbs, he can move his head and neck only, he is confined to an electric wheelchair all day for his comfort, he is choking...