Had my first visit today to try to help with peg tube. Nurse was from hospice and said that she sees survival from diagnosis to death of about 1 year. Not what I wanted to hear:mad: Also took last blood test to rule out any other possibility no matter how remote. Its official, I have ALS. Wife...
Hi everyone! I'm Sarah, 17 years old.
I look after my beautiful mum who was diagnosed with ALS/mnd one year ago (though her symptoms started in 2011).
She has lost movement in her legs and arms.
I am basically the only one that cares for my mum.
I have been giving her l serine powder (8...
Do you have Bulbar/ALS or Cervical Spondlyotic Myelopathy?
Dear Bulbar ALS patients, friends and family. The most helpful thing you can do is purchase a saliva pump machine like dentists have for under $100 for the person suffering from bulbar ALS. My mom used her saliva machine very frequently...
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Hello my name is david im 27 years of age im scared to death i have als no disrespect to anyone that has it but i just cant shake these symptoms , my symptoms are, started, left leg weakness i could still walk but i couldint balance on my tippytoes on that leg it was hard then a lil down the...
My daughter feels I am into advanced ALS. I'm still practicing with my bipap, and since my wheelchair won't fit into the bathroom I still use my walker to get there. I went to buffet and ate soup and scrambled eggs and orange juice and this weekend I am attending my nephews wedding next...
Hi, Im a 15 years old guy from Argentina, and Im scared to death.
I always get scared from health issues or possible diseases that I could have or catch, i.e: every time I get any symptom of some kind of cancer, I think I have it and scare my whole life off. Now that there has been this "boom"...
Here's my story.
In January of this year I started having tingling and burning in my arms and legs. Doc sent for an EMG in Feb and was normal. Brain MRI was also normal. Doc decided it was longstanding elevated but not diabetic level sugar levels. Started metformin. Also Lyrica to mask the...
"Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative disorder characterized by motor neuron degeneration that ultimately results in progressive paralysis and death. Growing evidence indicates that mitochondrial dysfunction and oxidative stress contribute to motor neuron degeneration...
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Hello,
My mom passed away in 2008 but before that she was diagnosed with Kearns-Sayre Syndrome around 2004. I have done a lot of reading on KSS and ALS and it seems to me that ALS is a better fit for her disease.
Her symptoms started with slurred speech, stumbling, hard to swallow, feeling...