crying

Morning everybody xoxo Hubbs went to the Montreal Neurological Institute yesterday. He had another EMG and his doctor is stumped at his progression. He says that Ron's progressing faster than he expected. So much so that he is sending him for intravenous immunoglobulin therapy (IVIG) thinking...

Hi Guys, I am currently 31 years old, male - going through an ALS scare. About 3 years ago I developed twitching and cramping in left leg. I went to GP who referred me to a Neurologist. I had 2 EMG'S which were normal, normal reflexes and strength. I was told i had BFS and moved on...

Rob, found out today that his girlfriend has Huntington's disease, which to me after studying about it, sounds worse than ALS. :( They have only been dating for a short time and today was his day off work, so his girlfriend took the day off so that they could spend the whole day together. She...

Hi all, have been a lurker on here over the last few days and decided to finally post as I've been greatly worrying about some symptoms I've been having and am terrified I have ALS. In the interests of full disclosure, I have suffered from health anxiety for many years (I am a 32 year old male)...

Mom cries all the time now. I do not see how it could be pain, because she is on enough pain meds to sink a ship. It is doubly worse because she cannot really communicate what is wrong. She will nod that there is pain, but then in a few, she will shake her head when we ask about pain...or she...

OMG you guys...I have to tell you that yesterday was such a bad day. I couldn't lift Ron off the lazy boy chair to position him into the commode, he kept falling and I had no strength. We managed and I could not get him off the commode. Finally we used the transfer circle and with all my...

Danged mod triggers: ------------ Haredi leader Rabbi Refoel Shmulevitz, a victim of the motor neuron disease, amyotrophic lateral sclerosis (ALS), may be the first known patient cured of ALS, which he was diagnosed with two years ago. ALS, more commonly known as Lou Gehrigs’ disease after the...

The day started out badly from the begining. I went to get him like I always do about 8:15 and I had trouble rousing him up at all he would halfway open his eyes and then back out. I asked him if he wanted to get up and on the potty like we do everyday and he said no, I asked if he was ok and he...

Got an interesting letter from the VA today saying they had been notified of my husband's death. It went on to say if the notice of death was erroneous, and the veteran is NOT deceased, he should contact them directly! We have also received two calls since his death, wanting to schedule...

My husband has a history of mnd in his family. His mother, auntie and brother having all had this horrible disease and sadly passed away. I think his grandmother also had this disease. They have identified the gene alteration that is causing this in his family using his brothers DNA; its FUS. I...