Wish me luck. Each time I've come here I've been worse. Now I can't walk with my head up, I think my fvc is going to be awful and my left hand is clawing. Right is starting to give muscle cramps so not far behind. Have a feeling I'll be doing some crying tomorrow night.
I take 15 pills twice a...
I don't watch CBS evening news all the time, but I have seen the On the Road segment featuring Chris at least three times. HE appears to be declining slowly if at all in the last year.
Last night it was about butterflies. I'll have to watch it over again until my crying doesn't interfere...
I can't stop crying after finding this out this afternoon. I hate knowing what's going to happen to her...she's my mommy! How can I begin to cope with this? Looking forward to talking to people on these forums and getting some support. Thanks in advance, everyone.
Hello, I am new to all of this and feeling over whelmed. Approximity 5 months ago my husband received several phone calls begging him to up root his life, that of myself and 16 year old daughter, because his mother was getting bad and we still only had possible diagnosis. At that time we only...
Hi all,
I have been a bit of a lurker on here for the past two weeks or so. A month ago today, I started noticing a lot of myoclonic jerks (more so than normal) when I would go to sleep at night. It was just the jerks at night for a couple of days, which made it hard to sleep and I also had a...
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Oh, man....did you ever feel so unappreciated? I feel so very very hurt right now.
There's nothing I won't do for Ron...NOTHING...I would give my very life to protect him.
We had our friends over and Ron's sister and husband over. Ron had to go to the commode and he was having painful cramps...
i'm having a very very bad day. My 47th birthday is coming up and i feel so hopeless.
I've got two sick parents and a kid going off to college in the fall. I never ever thought I'd be one of those inbetween caregivers.
my siblings are absolutely not useful, and my stepmother's own son hardly...
Hello everyone
My name is Rodrigo, 22 years old from Brazil.
My uncle passed away from ALS.
My symptoms started in the end of December, with a discomfort in my right foot and burning sensation. Then the twitches started all over my body, legs, feet, hands, arms, even in my jaw. Sometimes my...
Here's what I sent to my extended family of two dozen or so, and only one response. Why?
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This was my Jan. 2014 note to you all. Scroll down for the update.
Without Good Health ….
When it became obvious I was losing a pound a week last year, I joked that I would write a...
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wheelchair
:cry: It took 2 hours this morning to get hubby into wheelchair, he's getting weak and so am I. We have had our respite service Mon Wed and Fri and help the rest of the week. I injured my hip and couldn't walk. Got an injection of cortisone after doctor told me I had bursitis of the hip. Better...