Hi all,
As many of you know, I was diagnosed with Hereditary Spastic Paraplegia last summer. The only definitive way to diagnose it is through genetic testing, which I had done recently. My results did show a mutation, but it was a rare one of "unknown certainty". So, it might be the...
I have had a diagnosis of depression for about 10 years. Most of the time, medication helps, but sometimes it can overwhelm me. I am experiencing one of those times and it's making me feel horrible. I am becoming debilitated myself.
Last night I could feel the irritation building up while I...
I'm new here! I found this site because I'm trying to sell some of the abundance of medical equipment we accumulated while my Dad was sick. But, since I'm here...
My father's name is Mark T. Hoops. I'm not sure yet if it's unhealthy for me to use the present tense, but there will never be...
ankle
back
crying
dad
diagnosis
emg
eyes
falling
family
father
fell
goodbye
hope
hospice
lead
lift
lyme
mattress
medical
mnd
muscles
new here
night
nurses
research
sleep
spasms
story
support
taste
wanted
wheelchair
Darlene Long
10 hrs
Most of us can remember the euphoria we felt when we passed our driving test and suddenly, the world's door was opened. Freedom. Hello World, here I come!
Maybe all those teenage hormones flowing heighten those feelings of freedom, but being able to get yourself from point A...
hello.. My name is Katherine..My mother lost her battle with ALS in May of 2009. Here is our story. My mothers name was Susan :) She was a registered nurse for around 20 years. she was the type of person who made you feel warm and wanted by just being around her or in her care as a nurse. I am...
My name is John I am 19 years old. I have tried for months (believe me) to get the thought of having ALS out of my head, but things seem to be getting worse for me. Again i pray deeply for those suffering and those just diagnosed or have been in the past. I wish the best for all of you.
SPASMS...
Hello all,
I have been a lurker on your forum for the past couple of weeks. I have been amazed by how informative and compassionate people have been. I am hoping you will read and comment on my story.
Just over a year ago, I developed hip pain I walk (A LOT!). At first, I thought it was...
arm
back
concerned
crying
emg
fear
fibromyalgia
go away
hip
hope
kids
mri
muscle
muscle twitches
muscle twitching
myasthenia gravis
neurologist
pain
shoulder
spasms
story
stress
symptoms
tongue
twitches
twitching
weakness
young
My friends,
Not sure if we are on the up swing or the down swing of this rollercoaster... We spent the last 3 days crying and him begging me to give him all of the meds we have in the house.
He is done. But apparently his body is not.
I am so emotionally exhausted.
I am so angry that God would...
Hi All -- I received my second opinion diagnosis yesterday -- the doctor is planning to perform another EMG and spinal tap, but said he thinks it's ALS (he's a specialist in the field). As the news was confirmed (again), my heart sunk. I'm 40 years old and have two little kids. I haven't stopped...
Hello my lovely ones who just 'get it'.
It has been a rollercoaster. and I HATE rollercoasters. ALS rollercoasters especially.
So my sweet man had an awful reaction to the morphine with the pump. I really thought that I was going to lose him last week. A psychotic episode which required a nurse...