crying

  1. S

    Many chages since previous post in March

    I apologize in advance for the length of this, but I thought the more detail I provided the better the input I can receive. I have tried my best to break it into reasonable length paragraphs to make it more manageable for those who choose to read it. My first post back in March is closed...
  2. N

    Falling apart in front of PALS

    I've tried so hard to keep it together these past 8 months or so ... but yesterday I started to cry in front of him and he held me quietly and said, "It's ok - it's normal ... there would be something wrong if you didn't cry. You've been doing such a good job..." OMG - him comforting me. I'm...
  3. L

    Emotional lability and Nuedexta

    I recently returned from a trip to Minnesota to see family & friends. The thought of traveling alone was a bit scary, but I decided it would be fine. After two weeks there, my friend (who I met on this forum and who has PLS) dropped me off at the airport. After saying goodbye and getting...
  4. C

    Very bad EMG

    Hey guys, been running from the dreaded ALS for a while now. It seems like it is inevitable at this point. Presented with eye fatigue, breathing difficulty, and weakness in one of each limb. Twitches started in legs at the same time I noticed the llimb weakness. Not much long later, I had...
  5. K

    Help me help my Dad... Again

    Something new that has been happening is that he's having shoulder and neck pain. It's so bad that he's crying out in pain. What is this and what do we do to stop it? I know yall told me about the bipap machine. He tried it for one stinking minute. He says this is not a headache. HELP!
  6. Graybeard

    Without Good Health...

    I was diagnosed last December, so this is a little late. I found this Forum a few weeks ago, and I guess it's time to introduce myself. Because of my 60 lb weight loss, the neuro didn't give me much time; weeks or a few months. You can see how little I knew about the disease back in January...
  7. D

    Both Physical and Mental Pain is becoming much worse...What to do?

    So, I am new to this forum, and I have been trying to read as much as possible. But, I couldn't find anyone that asked this question, so I am going to ask it. Or maybe someone did in the past, and it is just on many many pages back, and I did not go back far enough. So apologies to those who...
  8. J

    Frustrated with Doctors

    So I have a family member (my father) who has been undergoing various evaluations over the years for deteriorating health. In the past my Dad has had throat cancer and was treated with radiation so many of the issues that he has had over the years since then, has been with swallowing and eating...
  9. S

    New bulbar onset

    I was just diagnosed with bulbar onset ALS at Johns Hopkins. So far I have mostly slurred speech but I can feel my swallowing starting to change. I'm 63, retired and with good health insurance. I had a job where I traveled the world, and have lived a great and adventurous life. I am not...
  10. W

    Dr Google ruined my life: A manifesto (To everyone who thinks they might have it)

    Hello everyone, Some of you might remember me from a few weeks to a month ago. I had/have some progressive issues with twitching in my legs, weakness/pain in my hand and breathing difficulty. This is just a heads up about the dangers of self diagnosis on the internet. No matter who you ask be...
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