I apologize in advance for the length of this, but I thought the more detail I provided the better the input I can receive. I have tried my best to break it into reasonable length paragraphs to make it more manageable for those who choose to read it. My first post back in March is closed...
I've tried so hard to keep it together these past 8 months or so ... but yesterday I started to cry in front of him and he held me quietly and said, "It's ok - it's normal ... there would be something wrong if you didn't cry. You've been doing such a good job..."
OMG - him comforting me. I'm...
I recently returned from a trip to Minnesota to see family & friends. The thought of traveling alone was a bit scary, but I decided it would be fine. After two weeks there, my friend (who I met on this forum and who has PLS) dropped me off at the airport. After saying goodbye and getting...
Hey guys, been running from the dreaded ALS for a while now. It seems like it is inevitable at this point.
Presented with eye fatigue, breathing difficulty, and weakness in one of each limb. Twitches started in legs at the same time I noticed the llimb weakness.
Not much long later, I had...
als
angry
arm
awareness
back
bed
bipolar
breathing
bulbar
bulbar onset
confused
crying
diaphram
emg
equipment
eye
fatigue
fear
heart
ice
immediately
life
memorial
motor neuron disease
night
onset
progression
respiratory
running
speech
stress
stupid
support
symptoms
tiredness
twitches
weakness
young
Something new that has been happening is that he's having shoulder and neck pain. It's so bad that he's crying out in pain. What is this and what do we do to stop it? I know yall told me about the bipap machine. He tried it for one stinking minute. He says this is not a headache. HELP!
I was diagnosed last December, so this is a little late. I found this Forum a few weeks ago, and I guess it's time to introduce myself. Because of my 60 lb weight loss, the neuro didn't give me much time; weeks or a few months. You can see how little I knew about the disease back in January...
So, I am new to this forum, and I have been trying to read as much as possible. But, I couldn't find anyone that asked this question, so I am going to ask it. Or maybe someone did in the past, and it is just on many many pages back, and I did not go back far enough. So apologies to those who...
So I have a family member (my father) who has been undergoing various evaluations over the years for deteriorating health. In the past my Dad has had throat cancer and was treated with radiation so many of the issues that he has had over the years since then, has been with swallowing and eating...
als?
atrophy
brain
brother
crying
dad
diagnose
diagnosis
eating
family
family member
father
feeding
feeding tube
frustrated
health
muscle
muscle wasting
muscle weakness
muscles
pneumonia
questions
research
spasms
swallowing
test
testing
tests
tongue
wanted
weakness
I was just diagnosed with bulbar onset ALS at Johns Hopkins. So far I have mostly slurred speech but I can feel my swallowing starting to change. I'm 63, retired and with good health insurance. I had a job where I traveled the world, and have lived a great and adventurous life. I am not...
Hello everyone, Some of you might remember me from a few weeks to a month ago. I had/have some progressive issues with twitching in my legs, weakness/pain in my hand and breathing difficulty.
This is just a heads up about the dangers of self diagnosis on the internet. No matter who you ask be...