This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
I was just reading this market report & it makes mention of 3 drugs available on the market for ALS - Radicava, Riluzole & another called Neuronata-R. I've never heard of that one before & it looks to be a Chinese Stem Cell therapy? I wonder why it made it into this report...
Amyotrophic...
My issues started in 2014. I started having numbness and tingling on one side of my body and when I would move I would walk my right leg would have a slow response. I saw a neurologist and my clinical exam looked fine and he ordered no testing. These feelings seemed to come and go over the next...
Hey Everyone,
Recently a family member of mine has been diagnosed with Anterior Horn Cell Disease caused by MND. They have been given a prognosis of two years. But I am having trouble trying to find out information about it, and contrary to what I have found on this forum it seems to be...
Assuming you had access to both, and cost was not an issue, which would you choose? Radicava or a 50/50 coin flip as a participant in the NurOwn stem cell trial (placebo or actual treatment)?
You can't do both.
My wife started Radicava last week, but is still haunted by the PR from BrainStorm...
I have recently been diagnosed with anterior horn cell disease.
Has anyone else been diagnosed with this? Information about this has difficult to find, can anyone recommend any sites?
My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
bed
bed sores
breathing
brother
cell
coughing
eyes
fear
go away
hope
movement
muscles
night
pain
pneumonia
progression
sad
saliva
scared
speech
thumb
tongue
venting
I have done for my self "Mri"doctor told me it's apparent theirs atrophy in your brain cell, is it possible that atrophy of brain cell apparent in MRI?
Hi all,
Has anyone participated in Cedars-Sinai's CNS10-NPC stem cell study? My husband is strongly considering participating in this study and his Neurologist has been pushing him to do it, but we are obviously concerned about possible outcomes. It sounds like most participants have made it...