This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have pain. My wife, Susan, had and EMG 2 years ago the results showed " diffuse disorder of anterior horn cell" ...which means MND and ALS. Susan was at MGH for 3 weeks to find out if they could manage her pain...and they could not...even with morphine. She came home form MGH on Sat Nov 26, in very bad shape. They spent way to much time with MRI's and other tests at MGH and I should have put my foot down and insisted that she come home earlier. Susan came home from MGH on the 26th and Sunday morning the 27th I could not wake her....she was breathing but apparently in a coma...eyes slightly opened. I sent her back to the hospital because I wasn't sure what was going on...and she passed away the next day. I was with her when God took her. Her funeral was Dec1, and our 39th wedding anniversary would have been Dec 2. I also have found out that her mother and sister had this disease. Anyway, I can't talk or think about this anymore. I will never get over this. ALS is the cruelest thing that I have ever witnessed.