Hi AKNate, I am new to this forum, as of about 10 minutes ago actually!
Let me introduce myself. My name is Ange, I am from Sydney and my sister was diagnosed 12 months ago with Bulbar Onset MND. I can see in one of the threads you have been to Japan to have treatment with Edaravone. As it is still not approved by the TGA, we are now investigating importing it ourselves.
My sister is being treated by Professor Matthew Kiernan and I am just waiting for them to come back with some information on what we do to access it.
Anyway, I wanted to reach out and at least have a conversation with someone who has used the drug and the results.
Many thanks for you support.
Warm Regards,
Ange
Let me introduce myself. My name is Ange, I am from Sydney and my sister was diagnosed 12 months ago with Bulbar Onset MND. I can see in one of the threads you have been to Japan to have treatment with Edaravone. As it is still not approved by the TGA, we are now investigating importing it ourselves.
My sister is being treated by Professor Matthew Kiernan and I am just waiting for them to come back with some information on what we do to access it.
Anyway, I wanted to reach out and at least have a conversation with someone who has used the drug and the results.
Many thanks for you support.
Warm Regards,
Ange