gigem
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  • I was in the AMX0035 trial for 6 months. I am now on the Open Label. It is impossible to determine whether it did any good. My ALS has progressed over but impossible to know whether it would have progressed further or faster if I wasn’t in the trial. Trial will not be over until December 2018 and research results known thereafter. There are not many alternatives so I resist and find meaning in resistance. The only downside for me has been the travel costs. I live in Miami and the trial is in Boston. Travel expenses to participate are on my nickel.
    Hi, my Dad is looking into participating in the AMX0035 trial and I saw your post regarding your wife going through the screening process in May. Did she proceed with the trial? And if so has she had positive results yet?
    Thank you for your time.
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