breathing

  1. tripete

    A new short story

    Raoljost - (A Guiding Light) Chapter 1 I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes. I could hear the hounds of hell...
    • tripete
    • Thread
    • ability age angry breathing crying dad death desperation exercise eyes fatigue fell free grief lead lift nose pain power problem sleep story stroke taste wanted wes wrong
    • Replies: 3
    • Forum: Off topic everything
  2. J

    MND timescales or other neuro issues?

    Good morning all, It’s a little advise I’m seeking as all the doc’s I’ve seen and test done have drawn a blank, but the fact remains, my condition is getting worst? I'm not sure what I have but I'm thinking its got to be a nero issue as everything else it coming back as clear, but I'm still...
    • JDB1964
    • Thread
    • back breathing breathing issues decline diagnosis diaphragm eating fingers hours ice issues mnd mri muscle muscle pain muscles no diagnosis pain problems running sleep swallow swallowing test voice work
    • Replies: 4
    • Forum: Could this be ALS?
  3. B

    First to go, voice or ability to swallow?

    Hi everyone, I have received an unofficial diagnosis and am losing my speech quickly, along with lots of respiratory weakness and breathing issues. My voice appears to be going first (especially tongue weakness) and I was wondering how long it took those who have lost the ability to swallow to...
    • Brandi
    • Thread
    • ability breathing breathing issues clinic confused diagnosis dysphagia early feeding feeding tube helpful oxygen problems research respiratory sleep speech stats swallow tongue vision voice weakness
    • Replies: 28
    • Forum: Could this be ALS?
  4. T

    New on Site

    Hello I have been reading several threads on the site since my friend was diagnosed with ALS 5 months ago. First I want to say this site has been a wealth of information and I am grateful for all here who answer questions. I was hoping to get some information on the Bipap vs the trilogy. My...
    • terris
    • Thread
    • als bipap breathing diagnosed diagnosis friend information oxygen questions reading respiratory sleep travel trilogy worried
    • Replies: 0
    • Forum: Newly diagnosed
  5. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
    • tripete
    • Thread
    • age als bipap breathing coughing cramping cramps diaphragm dying family fasciculations fatigue feeding fingers foot grace headaches muscle muscle pain muscle wasting pain phlegm sleep venting work
    • Replies: 47
    • Forum: General discussion about ALS/MND
  6. wishmobbing

    Forum refugee from Germany

    Hi folks! I have a good feeling about finding this forum! I already found a LOT of helpful information in the german ALS forum, but there's not a lot of people around "living" in the forum, spending time with each other. And that's what I could use, a community where everybody know's what a bad...
    • wishmobbing
    • Thread
    • als back bed breathing clinic dad diagnosed early familial familial als family helpful hope life night peg power sleep speech story support taste vent wes wheelchair
    • Replies: 22
    • Forum: New members
  7. F

    My wife died of ALS last Monday, Nov 27,2017

    This is the last time that I will post to this site. I was a care giver for my wife for 2 years....I was in denial about her ALS and never believed it. She had horrible pain before she passed...so anyone who thinks that ALS isn't painful is wrong. Some people with this horrible disease do have...
    • finiteguy
    • Thread
    • age als back breathing cell denial emg eyes mnd morphine mri pain tests wife wrong
    • Replies: 14
    • Forum: In memory of
  8. G

    Speech Device for Bulbar-onset ALS

    Hi guys, I hope you are well and coping with any difficult situations that you are currently facing. I am after a recommendation for a speech device for my father, a bulbar-onset PALS. He had a trach inserted 3 weeks ago so cannot speak, but his voice was barely discernible in the weeks...
  9. M

    Is this really ALS?

    Hi and thanks for letting me join this forum. Let me start off by saying that I am not in denial, I am just following a gut feeling and want to see if anyone would do the same thing. My dad (67) was diagnosed with ALS recently. It started with him having trouble to button up a shirt and sign...
    • Mamalena
    • Thread
    • als als? back bipap breathing clinic dad denial diagnosed emg heart lyme lyme disease mri muscle neurologist night pain problem shaking speech swallow tests tiredness weakness
    • Replies: 3
    • Forum: Newly diagnosed
  10. S

    “Make-a-wish” organizations for those w ALS?

    Hi! I’m new to this forum - my brother-in-law was diagnosed summer 2017. I’m looking in to organizations which grant wishes to adults with ALS. I’d love to help him and my sister take their family to Disney while it’s still feasible. He can currently still walk but is weakening and has breathing...
    • Shan123
    • Thread
    • als als? breathing breathing issues brother diagnosed family grant ideas love
    • Replies: 4
    • Forum: Off topic everything
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