i found articles...
https://sg.news.yahoo.com/schizophrenia-drug-could-treat-als-101803085.html
any comments?
i think that having ALS is a kind of license to do everything with ourselves, so why dont we try? i am the first one to try.
Starting to have episodes where I want to inhale but the muscles aren't responding. I still have about 40 percent lung capacity and use the AVAP all night and several hours during the day but even when it tries to force a breath, my lungs don't always respond. I suspect the end draws near.
I'll get to the update. The VitalityALS phase three trial ended or all participants and trials in October. All reports and data were due for submission.
They now think it will be March before publication.
The goal of continued good breathing numbers is holding steady. My FVC and SVC numbers...
About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
My dad has been diagnosed with "MND likely ALS " a month ago in North Western University hospital in Chicago. In 4 days we are going to his second ALS clinic visit. During our last visit, i was too overwhelmed and unprepared to ask questions, but i want to make sure i am all of the important...
I was wondering if someone knowledgeable would be able to help me with some concerns regarding my fathers condition. He has been tested for over a year now and we still don’t have a final diagnosis but doctor seems to be leaning towards ALS. My father was diagnosed with Ocular melanoma 13 years...
als
back
breathing
communication
cpap
cramps
diagnosed
diagnosis
diet
emg
eye
eyes
father
myasthenia gravis
night
please help
slurred speech
speech
surgery
swallowing
symptoms
tests
tongue
trouble swallowing
twitching
voice
Dear all
I'm in a really tough spot and have been for about 3 months. Please can I run my symptoms by you to see if anyone can relate to my condition and progress.
I have felt a bit off since the beginning of the year like a growing fatigue, but I put this down to having a 1 year old (now...
Hi everybody
I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy.
I’ll try to make this pithy, but it’s a long story, if...
My beautiful sister died very unexpectedly of complications of ALS in the middle of the night last night. She had just been in the hospital for replacement of her feeding tube, and the Hospice nurse had examined her a few days ago, and no red flags were raised except for the fact that her blood...
I at the point where FVC is about 20%, and I'm have a lot of trouble breathing. I have had my trilogy adjust 4 or 5 times. I have also had 4 overnight o2 saturation test done. In all the tests my 02 saturation has been between in the low to mid 80,s and that's with oxygen.
I also have periods...