breathing

  1. jethro

    Do shizophrenia and ALS have same roots, so it can be treatead the same way?

    i found articles... https://sg.news.yahoo.com/schizophrenia-drug-could-treat-als-101803085.html any comments? i think that having ALS is a kind of license to do everything with ourselves, so why dont we try? i am the first one to try.
  2. K

    Breathing challenge

    Starting to have episodes where I want to inhale but the muscles aren't responding. I still have about 40 percent lung capacity and use the AVAP all night and several hours during the day but even when it tries to force a breath, my lungs don't always respond. I suspect the end draws near.
  3. Ed340hp

    Tirasimptev continues VIGOR ALS

    I'll get to the update. The VitalityALS phase three trial ended or all participants and trials in October. All reports and data were due for submission. They now think it will be March before publication. The goal of continued good breathing numbers is holding steady. My FVC and SVC numbers...
    • Ed340hp
    • Thread
    • als arm atrophy balance breathing communication data exercise falling food free friend fvc improvement muscle physical therapy progression running therapy treatment trial update walker wheelchair wrist
    • Replies: 5
    • Forum: Research and trials
  4. T

    Exhaustion

    About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...
    • Twitcherama
    • Thread
    • age back bed botox breathing depressed exhaustion feeding hours saliva sleep therapy ventilator
    • Replies: 8
    • Forum: People with ALS (PALS)
  5. worrieddaughter77

    Questions to doctors during second ALS clinic visit.

    My dad has been diagnosed with "MND likely ALS " a month ago in North Western University hospital in Chicago. In 4 days we are going to his second ALS clinic visit. During our last visit, i was too overwhelmed and unprepared to ask questions, but i want to make sure i am all of the important...
    • worrieddaughter77
    • Thread
    • als als clinic brain breathing clinic dad diagnosed drug trials genetic genetic testing mnd myasthenia gravis peg progression questions radicava rilutek stress supplements testing wes
    • Replies: 12
    • Forum: Current caregivers
  6. B

    Please help does my father have ALS

    I was wondering if someone knowledgeable would be able to help me with some concerns regarding my fathers condition. He has been tested for over a year now and we still don’t have a final diagnosis but doctor seems to be leaning towards ALS. My father was diagnosed with Ocular melanoma 13 years...
    • Bobby888
    • Thread
    • als back breathing communication cpap cramps diagnosed diagnosis diet emg eye eyes father myasthenia gravis night please help slurred speech speech surgery swallowing symptoms tests tongue trouble swallowing twitching voice
    • Replies: 8
    • Forum: Could this be ALS?
  7. S

    Some help required

    Dear all I'm in a really tough spot and have been for about 3 months. Please can I run my symptoms by you to see if anyone can relate to my condition and progress. I have felt a bit off since the beginning of the year like a growing fatigue, but I put this down to having a 1 year old (now...
    • Studavey
    • Thread
    • age atrophy back book breathing breathing issues clinical early emg exercise fatigue fingers holiday mad muscle neurologist neurology stroke support swallowing symptoms tests tremor twitches twitching weakness
    • Replies: 17
    • Forum: Could this be ALS?
  8. G

    Just some questions

    Hi everybody I was diagnosed with motor neuron disease about ten years ago, and since, I’ve been told I don’t have motor neuron disease, and I’ve also been told that I may have a neuropathy, or some form of limb girdle muscular dystrophy. I’ll try to make this pithy, but it’s a long story, if...
    • Glenn1970
    • Thread
    • biopsy breathing bulbar diagnosed diagnosis enzymes eyes foot info motor neuron disease muscle muscle biopsy muscles problems questions story tests tremor
    • Replies: 3
    • Forum: Could this be ALS?
  9. H

    The strife is o'er, the battle is won

    My beautiful sister died very unexpectedly of complications of ALS in the middle of the night last night. She had just been in the hospital for replacement of her feeding tube, and the Hospice nurse had examined her a few days ago, and no red flags were raised except for the fact that her blood...
    • Hewitt
    • Thread
    • als breathing breathing issues death feeding feeding tube free grace hospice life love night pressure
    • Replies: 16
    • Forum: In memory of
  10. P

    Questions about tracheostomy

    I at the point where FVC is about 20%, and I'm have a lot of trouble breathing. I have had my trilogy adjust 4 or 5 times. I have also had 4 overnight o2 saturation test done. In all the tests my 02 saturation has been between in the low to mid 80,s and that's with oxygen. I also have periods...
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