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I was diagnosed with ALS in September of 2010, and knew at that time that I must make something positive come of this tragic disease. So I wrote a children's picture book, "Your Ema Loves You", to let my young grandchildren know that, even though a grandma's body may not function normally, her...

Unfortunately there doesn't seem to be much about May being ALS Awareness Month in the media, but there is an exciting event coming up: Why Not Tri - Wasilla Triathlon Note: All proceeds will be donated to the ALS Association Doesn't this just make you all want to book a ticket to Alaska...

:mad: While surfing face book it was buzzing with shock and rage at the nationally aired radio show of Walton and Johnson. I listened for myself and couldn't believe what I heard. They were joking and laughing at Stephen Hawking saying he was a corpse being wheeled around and merely a blob of...

if there is a law in nature that x number of people must be diagnosed with als i am glad it was me an not another young person with small children (that always brings a tear) my wife of 55 years and i have been truely blessed. children grown and secure in their careers. two good and rewarding...

HI Unless you browse the "Do I have" threads, you won't know who I am--but I'm in the 'limbo' stage--though my neurosurgeon is convinced I have ALS based on his examination, fasciculations he saw in my hands, and bilateral atrophy in two separate areas on both arms. Anyway--- I'm a writer...

Hello everyone, I am very new to this site and am hoping I am in the correct place for this question. My husband was diagnosed with ALS in April 2010 so we are coming to a one year anniversary. I am overwhelmed most days in the care taking department. I recently have been introduced to the...

Hi all, I have not posted in a few days. We got a small "book" to fill out in the mail for our appt on Friday. J feels like the left arm, shoulder, and pectoral muscles are getting worse. :sad: He just keeps going along though, still exercising, and compensating with the right side. We are...

So, we have decided to not get a wheelchair van. And my PALS is NOT happy. Quite upset. We just feel that the expense is not reasonable at this point in her illness. We should have considered getting one a year or two ago. But she didn't want one. She thought the expense was too much...

A lot of members (including myself) seemed to be getting sucked in by all the hype surrounding Ipads and shelling out for this trendy device. The Ipad is actually a terrible choice for PALS. Apple designed the Ipad to be a touch screen device. It is a sad reality that sooner or later most...

Hey everybody! I wanted to give an update to what is going on my end of the world. I know alot of people come on this forum and throw out a bunch of worried/anxious questions (I was/am one of those people :razz:), but most don't return to say thank you and let you know how things are going...