Thanks for stopping by Lorna. We are doing ok. Though mum spends most of her time in bed she is not yet totally bedridden & so we can get out. Weather here has been beautiful which helps a lot. She started on a new drug last week to try to manage her saliva. It has made her much more comfortable which is great but has also had effects in the bladder dept which are not so good, especially since she can't communicate her needs. Did/do any of your pals have catheters? If so what's your experience with them like? Hope things are going well in your house
been awhile. sorry for that my friend. reaching out to everyone today as i am feeling on top of the world. i was reading how you guys came up with a solution for your PALS to have a job in your household. it made me so happy to hear that you were able to find her something to do. i bet its making a world of difference for her. every now and then i think our PALS need to be reminded that they still have so much worth...
Anyway, i hope the rest of your family and you are well and lets try to keep in touch a little more often.
I have found them to be incredibly supportive. Getting a PEG was a no brainer, a trache was another story but once they knew I was serious I had to convince a couple of doctors and they decided I was a good candidate and it went smoothly. Yes, they will do as you please and are very supportive. I am a strong personality and once I decide what I want no one is going to talk me out of it. But, I had no trouble with them doing what I wanted.
Are you considering a PEG and trache?