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  1. notme

    ALS Guardian Angel Fundraiser

    hello I spoke with Lisa today from ALSGA. She told me that the one thing they can use now is fundraisers. I posted on CL to get items that I can put either in a yard sale or post on CL to re-sell (As I have no $$ to donate of my own) I would also still like to get that book up and going and...
  2. arkallen

    The Cone of Silence

    On Tuesday we will celebrate Bugger’s first birthday! (less a cause for celebration is the expiry of my power chair’s warranty, somewhat sobering given that we have already had two new motors and two new batteries). My primary fascination a year ago was to discover just how far afield Bugger...
  3. R

    What questions to ask about symptoms

    Hi This is my first entry. I have been reading your posts since December. My husband received an official ALS diagnosis this June. We have 5 kids from 15 to four months old. Our Care Coordinator who met with us recently suggested I keep a journal of "symptoms" to keep track of what is going on...
  4. J

    its me...am back....

    ..sure hopes , friends that your well as could be...my computer broke and set off a chain of events that led to me , only now, getting my head round this japenese typing board...its a very long story..i might write a book....you knew i would not go away without saying goodbye...what you think i...
  5. D

    What does this sound like?

    Dear friends, I'm sure this will sound like a broken record, as I've read and searched the forums over the last few weeks and I'm familiar with many of the stories. I'm a 33 year old male. Approximately 6 weeks ago while holding a book in my left hand I noticed a slight tremor, a few days...
  6. Danijela

    Pool/hydro therapy

    This is something we have been trying to acces for while, to no avail. Here in the UK there seems to be no will to provide hydro theraphy for MND patients. Cold weather and lack of space/land means that there is no culture of private pools - I have never been to a house with a pool! One can...
  7. P

    REM Behavior Disorder

    I have been lurking on the forum for a week or so, for reasons of finding out the latest thinking on ALS; its possible causes, latest treatments, and research. I have learned a great deal and I thank you all for how candid you have been here on this forum. So I, too, will be candid with you...
  8. Kohler

    JoelC and my book

    Almost a year ago, when I was midway through writing my first novel, my sister began experiencing symptoms which lead me to this board. The first person to answer my very frightened initial post was JoelC; his picture immediately conveyed a sense of dignity and strength that reminded me of my...
  9. trfogey

    Ajrrt

    This is the occasion of my 1000th post on the board -- well, the 1000th post that made it through m o d e r a t i o n and wasn't subsequently deleted for violating one or another of the board rules. At any rate, the passage of such a milestone should be marked with something thoughtful or...
  10. arkallen

    Clever Bugger - my Powerchair Mods

    Most of my stable of wheelchairs, all known by the colourful name Bugger, have been modified out in the shed before they first set wheel inside the house. But when B4 finally arrived it was immediately evident that there was a great deal of work to be done! Bugger Mark IV is actually the...
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