hello
I spoke with Lisa today from ALSGA. She told me that the one thing they can use now is fundraisers.
I posted on CL to get items that I can put either in a yard sale or post on CL to re-sell (As I have no $$ to donate of my own)
I would also still like to get that book up and going and...
On Tuesday we will celebrate Bugger’s first birthday! (less a cause for celebration is the expiry of my power chair’s warranty, somewhat sobering given that we have already had two new motors and two new batteries).
My primary fascination a year ago was to discover just how far afield Bugger...
Hi
This is my first entry. I have been reading your posts since December. My husband received an official ALS diagnosis this June. We have 5 kids from 15 to four months old.
Our Care Coordinator who met with us recently suggested I keep a journal of "symptoms" to keep track of what is going on...
..sure hopes , friends that your well as could be...my computer broke and set off a chain of events that led to me , only now, getting my head round this japenese typing board...its a very long story..i might write a book....you knew i would not go away without saying goodbye...what you think i...
Dear friends,
I'm sure this will sound like a broken record, as I've read and searched the forums over the last few weeks and I'm familiar with many of the stories.
I'm a 33 year old male. Approximately 6 weeks ago while holding a book in my left hand I noticed a slight tremor, a few days...
als
arm
book
depressed
emg
family
fingers
go away
hours
ideas
muscle
muscle twitching
neurologist
pain
possible a
symptoms
tremor
twitches
twitching
weakness
wrist
This is something we have been trying to acces for while, to no avail. Here in the UK there seems to be no will to provide hydro theraphy for MND patients. Cold weather and lack of space/land means that there is no culture of private pools - I have never been to a house with a pool! One can...
I have been lurking on the forum for a week or so, for reasons of finding out the latest thinking on ALS; its possible causes, latest treatments, and research. I have learned a great deal and I thank you all for how candid you have been here on this forum. So I, too, will be candid with you...
als
angry
book
brother
christmas
dad
death
dementia
depression
diabetes
diagnosed
diagnosis
early
eye
familial
familial als
father
fear
fingers
genetic
introduction
life
lithium
lyme disease
meds
movement
paralysis
parkinsons
pneumonia
problems
questions
reading
rem behavior disorder
research
sad
sleep
symptoms
tests
therapy
treatments
weakness
wrong
Almost a year ago, when I was midway through writing my first novel, my sister began experiencing symptoms which lead me to this board. The first person to answer my very frightened initial post was JoelC; his picture immediately conveyed a sense of dignity and strength that reminded me of my...
This is the occasion of my 1000th post on the board -- well, the 1000th post that made it through m o d e r a t i o n and wasn't subsequently deleted for violating one or another of the board rules. At any rate, the passage of such a milestone should be marked with something thoughtful or...
Most of my stable of wheelchairs, all known by the colourful name Bugger, have been modified out in the shed before they first set wheel inside the house. But when B4 finally arrived it was immediately evident that there was a great deal of work to be done! Bugger Mark IV is actually the...
arm
back
ball
book
disability
driving
early
equipment
fatigue
finger
fingers
health
ideas
immediately
microphone
modifications
power
power chair
secure
speech
support
voice
wheelchairs
work