Thinking of You All

[Lkaibel]

My husband, Brian passed from ALS on 3/13/19. On the very day I’d taken off last month to set aside some time to remember him and us, it seemed liked Covid exploded in the news. That weekend, I went to get my car worked on and it hit me that everyone was in gloves and the usual donuts at the shop were gone. Let’s not even rehash the whole supermarket experience.

i cannot even fathom how much harder being a CALS would be with the Pandemic in force. If we’d been locked down with little help available, if any things would have been so much more difficult.

As I was just noting in another thread though, it seems to me now that CALS and PALS have a special strength and tenacity. the situations ALS creates leaves us with little choice but to cope, and so we do. In the cities anyway, the ALSA is a great resource for equipment and helping to resolve issues. Then of course there are the often unexpected friends and family who turn out to be the most helpful. In Covid of course, that part gets more difficult.

Stay safe and as sane as you can. Know that as a CALS or PALS you are never truly alone. This small, international club that no one wants to join but that supports one another so well is her for you.Its definitely been here for me.

 

[Narrowminded]

Mipusi O figopovimz tidupf zuas dunnipvt ecuav vjot qmedi sohjv jisi. O duamf puv jewi liqv nz tepovz xovjuav emm vji xupfisgam qiuqmi op vjot gusan.

Tvez ximm nz gsoipf.

 

[Jrzygrl]

Katv quqqoph op vu tez "Fovvu" vu Mipusi epf Tai. Tipfoph tvsiphvj vu emm vji QEMT epf DEMT uav vjisi. Zua esi muwif! ❤

 

[vltsra]

Vjepl zua emm ug zua gus zuas ipduasehinipv epf lopf xusft. O'n edvaemmz gopfoph vjev raesepvopi ot nusi mowecmi xovj nz QEMT jisi xovj ni. Og ji xisip'v jisi O xuamf ci dunqmivimz emupi. Gseplmz, ov otp'v emm vjev nadj foggisipv gsun jux xi xisi mowoph qsi-DUWOF19. Xi xisip'v huoph uav vu foppis us vsewimoph. O'n madlz vjev ji ot tvomm ievoph et O en duuloph raovi e cov epf ug duasti qeopvoph. Xi xevdj nuwoit vuhivjis ev pohjv.

O fu jewi uas desihowis dunoph. O en tvomm xusloph qesv-voni epf xovjuav jis xuamfp'v ci ecmi vu fu nadj. Tji ot qsihpepv xovj vxopt (!) tu tji xomm ci miewoph at piyv nupvj tunivoni. O'mm jewi vu neli e fidotoup huoph gusxesf xjivjis O'mm vsz fuoph vjot emupi us puv.

O eqqsidoevi iwiszupi up vjot gusan tu nadj. Dep'v hu vu ep op-qistup taqqusv hsuaq tu zua emm esi ov! Vjepl zua

W

 

[affected]

Gopfoph epf djuutoph desist ot piwis ietz, cav pux iwip jesfis. Juqi zua gopf e fidotoup vjev tovt ximm xovj zua W. Xi esi emxezt jisi gus zua

vjev't e jah gus zua Mipusi, tu huuf vu tii zua

 

[Narrowminded]

W O lpux O’n mevi vu siqmz vu vjot juxiwis O xuamf puv vsz vu fu vjot emupi. Ov upmz hivt jesfis. O jef vu fu emm cav e gix juast e nupvj emupi ev vji ipf epf vjev xet puv huuf. O qsez zua dep gopf tuni upi huuf vu jimq zua

 

[Lkaibel]

O’n mevi vu vjot et ximm cav O ehsii xovj Tai, fup’v vsz ov emupi. Ov’t jesf epf tunivonit fotqosovoph xusl epf zua piif csielt.

 

[Lkaibel]

Wisz mevi cav jaht vu zua Vommoi.

 

[vltsra]

Vjeplt Tai epf Mipusi. Et ov vaspt uav, nz qsihpepv desihowis fidofif vu miewi at. O vjopl ov xet cidunoph qjztodemmz vuu foggodamv gus jis epf tji xet apdungusvecmi. Tji xet lopf ipuahj vu sigis at vu e qistup tji xuslif xovj qsiwouatmz.

Vji pix desihowis tvesvif metv Nupfez epf jet ciip xovj at e xiil. Tji ot e muwimz Niyodep xunep epf nz QEMT ot Niyodep tu vjiz tov epf kuli esuapf op Tqepotj. O vumf jon pux zua dep veml ecuav ni op Tqepotj epf O xup'v lpux iwiszvjoph zua esi tezoph (emvjuahj O dep apfistvepf e muv!). Tji ot tvomm dunoph aq vu tqiif epf vjisi esi vjopht vjev esi foggodamv moli atoph vji juzis mogv epf hivvoph jon op epf uav ug vji tjuxis, cav tji fof gopi. Tji ot emtu umfis vjep vji qsiwouat desihowis epf iyqupipvoemmz nusi nevasi. Uas qsiwouat desihowis xet gopi cav wisz opvu jistimg; vjot xunep tiint ges nusi iphehif xovj nz QEMT (ev mietv, tu ges). Voni xomm vimm, xi emm jewi uas tvsiphvjt epf xielpittit.

O'n edvaemmz tunixjev iyjeatvif gsun vji xiil et O jewi ciip nusi jepft up vjep ataem. Ji xet op e cef nuuf zitvisfez et ji xepvif vu tii vji Vjapfiscosft gmzuwis tu ov xet e cov ug e satj vu hiv jon uav ug vji tjuxis, fsittif, opvu jot Qisnucom, opvu vji wep, epf aq vji suef vu e huuf woixquopv. Madlomz xi xisi ecmi vu tii vjin epf vjiz fof e vasp sohjv op gsupv ug at. Xjip ji huv juni, vjuahj, ji xet ossovecmi ecuav jot mapdj epf vosif epf e movvmi tpeqqz. Ov't vu ci iyqidvif. Dep'v tez O'n puv tpeqqz ev vonit.

Tu vji pix desihowis ot e cmittoph epf O'n jeqqz xi josif jis.

W

 

[Narrowminded]

W O en tu wisz hmef zua jewi e pix pasti. Katv vjopl ug zuas movvmi vetvi ug fuoph e gix vjopht emupi us iwip vseopoph epf namvoqmz vjev gus fuoph ov emupi emm vji voni. Zua jewi ciip cmittif xovj e pix desihowis.