- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
My husband, Brian passed from ALS on 3/13/19. On the very day I’d taken off last month to set aside some time to remember him and us, it seemed liked Covid exploded in the news. That weekend, I went to get my car worked on and it hit me that everyone was in gloves and the usual donuts at the shop were gone. Let’s not even rehash the whole supermarket experience.
i cannot even fathom how much harder being a CALS would be with the Pandemic in force. If we’d been locked down with little help available, if any things would have been so much more difficult.
As I was just noting in another thread though, it seems to me now that CALS and PALS have a special strength and tenacity. the situations ALS creates leaves us with little choice but to cope, and so we do. In the cities anyway, the ALSA is a great resource for equipment and helping to resolve issues. Then of course there are the often unexpected friends and family who turn out to be the most helpful. In Covid of course, that part gets more difficult.
Stay safe and as sane as you can. Know that as a CALS or PALS you are never truly alone. This small, international club that no one wants to join but that supports one another so well is her for you.Its definitely been here for me.
i cannot even fathom how much harder being a CALS would be with the Pandemic in force. If we’d been locked down with little help available, if any things would have been so much more difficult.
As I was just noting in another thread though, it seems to me now that CALS and PALS have a special strength and tenacity. the situations ALS creates leaves us with little choice but to cope, and so we do. In the cities anyway, the ALSA is a great resource for equipment and helping to resolve issues. Then of course there are the often unexpected friends and family who turn out to be the most helpful. In Covid of course, that part gets more difficult.
Stay safe and as sane as you can. Know that as a CALS or PALS you are never truly alone. This small, international club that no one wants to join but that supports one another so well is her for you.Its definitely been here for me.