Willow
Distinguished member
- Joined
- Dec 28, 2006
- Messages
- 102
- Reason
- DX MND
- Diagnosis
- 04/2012
- Country
- CA
- State
- East Coast
- City
- NA
I have recently been told by a neurologist that I have some sort of genetic neuropathy so I'm not sure that this fourm is the correct place for me to post. Unfortunately I know of no others. He said there will be other Dr. and tests to be done, including cardiologist/heart, genetics doctor, referral to a special clinic out of province to see the "neurologist's neurologist" as he put it. I also need to see an orthopedics Dr.
All of these people together will be able to more identify the type of neuropathy and paths to take with it. These appointments I have been warned could take months and months. To give you a bit more insight I have had an MRI which shows atrophied muscle and tumour, also examined by two ortho speicalists, full neuro exam and both types (needle and surface) of EMG (?) tests.
I am interested in hearing any of your thoughts on all of this and information or direction you could offer would be much appreciated. Thank you in advance.
Willow
All of these people together will be able to more identify the type of neuropathy and paths to take with it. These appointments I have been warned could take months and months. To give you a bit more insight I have had an MRI which shows atrophied muscle and tumour, also examined by two ortho speicalists, full neuro exam and both types (needle and surface) of EMG (?) tests.
I am interested in hearing any of your thoughts on all of this and information or direction you could offer would be much appreciated. Thank you in advance.
Willow
