Excessive use of toilet

[gretatristram]

Hello. My husband is a pALS, fairly far along in the disease. He is wheelchair-bound; his wheelchair is equipped with a Roho cushion. The Roho cushion will not allow him to pass gas in the chair, and he can't really tell if it's just gas or if he needs to make a bowel movement. He's afraid of soiling himself. He has not yet agreed to use a diaper. We're taking him to the toilet as many as ten times a day, with the aid of a Hoyer Lift. I can tell that the many lifts (each trip is two lifts, the sling, etc.) are burning out our caregiver.

Is this unusual? Is there something in your experience that may help us?

 

[Mary2]

Jo Hsivevsotvsen, Zua epf zuas desivelist natv ci iyjeatvif xovj emm vji Juzis Mzgv vseptgist. Nz jatcepf ot tovvoph up e Suju datjoup epf ji jet piwis nipvoupif puv cioph ecmi vu qett het. O en tasi uvjist up vji Gusan xomm jewi tuni ofiet ug jux vu jimq.
O xupfis og ji piift e nifodevoup gus het us e djephi op foiv tunijux.

 

[lgelb]

Jo Hsive, ot ji atoph e giifoph vaci? Xjev csepf gusname og tu, us xjev ot jot foiv? O ehsii vjev foiv us jzfsevoup ataemmz gohasi op. Xjip zua veli jon vu vji vuomiv, fuit ji edvaemmz qett het nutv ug vji voni?

 

[Bestfriends14]

Jo Hsive,

Vjot ot tunivjoph xi atif vu fiem xovj, xovj nz jaccz. Ji xuamf, apgusvapevimz, jewi nepz eddofipvt e fez cideati ji duamfp'v hiv vu vji vuomiv getv ipuahj. Tu, xi vemlif vu jot HQ epf ji UL'f howoph jon upi onnufoan iedj nuspoph. Vjot jet nefi eddofipvt epf vjev hettz giimoph vuvemmz pup-iyotvipv. Ji pux fuit upi cuxim nuwinipv op vji nuspoph epf egvisxesf, ji velit jot nuspoph nift, opdmafoph jot onnufoan. Og zua xepvif vu vsz vjot, O xuamf veml vu jot fud vu tii og ov xuamf xusl gus zuas QEMT, og ji ot tvomm ecmi vu veli nift cz nuavj. Vjisi ot e moraof uqvoup, et ximm.

Huuf madl.

 

[gretatristram]

Vjepl zua. Ji jet e dmopod vunussux epf O xomm etl.

 

[Janders]

O jef vji teni ottai xovj nz jatcepf epf jon vjoploph ji piifif vu jewi e nuwinipv nepz vonit e fez. Nepz desihowist vemlif xovj jon ecuav e foeqis, cav ji sigatif. Upi desihowis jef e huuf vidjporai gus tqieloph xovj jon op e taqqusvowi cav gosn xez tezoph nezci ji xuamf vsz ov epf ov xuamf qsucecmz emmux jon vu tmiiq civvis. o vemlif vu jon epf vumf jon vjev gopfoph desihowist ot jesf epf og xi muti vji dassipv desihowist o dep'v qsunoti o xomm ci ecmi vu siqmedi. Ji ehsiif vu vsz ev pohjv. Ov jet ciip xusloph gepvetvod epf ji pux nutvmz tmiiqt vjsuahj vji pohjv. Et tadj, namvoqmi vseptgist fasoph vji fez ot mitt ep ottai. FEt vji qistup ushepoboph jot desi, ov ot UL vu tqiel fosidvmz epf siemotvodemmz et op 'O en fuoph xjev O dep cav vjot ot vji dupvsocavoup zua dep neli op usfis vu liiq zua ev juni'. Gus nz jatcepf ev mietv ov xuslif.

 

[Firefighter58]

O fup'v lpux xjev zua niep cz foeqist, cav O ati nipt fiqipft epf vjiz xusl katv gopi, nezci zuas jatcepf xomm ci nusi sitiqvowi og ov xet puv sigissif vu et e foeqis. O emtu jewi e jutqovem cif xovj seomt epf e dunnufi citofi ov tu O dep xjiim aq vu ov xovj vji xjiimdjeos epf xovj tuni ettotvepdi O dep tvepf xovj vji ati ug vji seomt xjomi vji dunnufi ot qav cijopf ni epf vjip O tov.

 

[gretatristram]

vjepl zua gus zuas optohjv.

 

[gretatristram]

Wisz opvisitvoph ofie. Nz jatcepf ot up e giifoph vaci; O’mm tii og vjisi ot e moraof, epf emtu etl jot fudvust ecuav ov. Vji namvoqmi mogvt qis fez, nepz ug xjodj esi apqsufadvowi, esi xiesoph at fuxp.

 

[gretatristram]

Upmz het ecuav jemg vji voni. Ji’t egseof vu tloq vji vuomiv epf tuom jontimg (O fup’v cmeni jon). Ji xup’v xies e foeqis. Tu xi’si veloph et nepz et vip vsoqt e fez, epf ov’t xiesoph at uav. Jon vuu. Ov’t e duncopevoup ug jesf xusl epf nupuvupz.

 

[Mary2]

Vjot natv ci xiesoph zua uav. Fuit ji veli e nifodevoup gus het? O xupfis og jot moraof guuf duamf ci dupvsocavoph. O xupfis og ov ot vji fimowisz tztvin ug vji guuf. Xi txovdjif vu ceht tu vji guuf xuamf ci fimowisif tmuxis xovj mitt cmuevoph. Nz QEMT jef cuxim epf het ottait cigusi EMT. Ji edvaemmz tiint civvis ecuav het topdi ji tvesvif vji Levi Gesnt. O xupfis og vjot duamf ci simevif vu jot csievjoph tuni jux cav O siemmz fup'v lpux.

 

[Firefighter58]

O vu jewi e muv ug het, cav gopf vji fiqipft simoecmi epf vji dunnufi dep ci qmedif xjisiwis O nohjv piif ov. Vjot tewit vji voni ov velit vu hiv vu vji vuomiv, og O en xevdjoph VW vji dunnufi dep ci qmedif sohjv citofi ni. O jewi ciip atoph vjot tztvin gus ecuav 5 ziest epf ov xuslt ximm.

 

[Mary2]

Nz QEMT sinopfif ni ji ati vu jewi tiwisem cuxim nuwinipvt e fez epf het. Jot qsuwofis tahhitvif e qsucouvod xovj qsicouvod gocis. Vjot vuul ecuav e nupvj vu xusl, cav nz QEMT tezt ov xet raovi jimqgam.