gretatristram
Member
- Joined
- May 20, 2022
- Messages
- 10
- Reason
- CALS
- Diagnosis
- 08/2020
- Country
- US
- State
- NJ
- City
- Westfield
Hello. My husband is a pALS, fairly far along in the disease. He is wheelchair-bound; his wheelchair is equipped with a Roho cushion. The Roho cushion will not allow him to pass gas in the chair, and he can't really tell if it's just gas or if he needs to make a bowel movement. He's afraid of soiling himself. He has not yet agreed to use a diaper. We're taking him to the toilet as many as ten times a day, with the aid of a Hoyer Lift. I can tell that the many lifts (each trip is two lifts, the sling, etc.) are burning out our caregiver.
Is this unusual? Is there something in your experience that may help us?
Is this unusual? Is there something in your experience that may help us?