- Joined
- Aug 22, 2022
- Messages
- 649
- Reason
- CALS
- Diagnosis
- 08/2022
- Country
- US
- State
- NJ
- City
- Livingston
Tom PALS seems to be progressing rapidly. No doctor has said this. But week to week he has changes in body ability and strength.
I was supposed to take him out this am to see pulmonologist. Up at 6am for 8am wheelchair transport. I have been using the sling and hoyer for several weeks, many times per day. I needed to get a diaper on him and zip away pants. Could not do it. He cannot lay below 60 degrees. He has no core strength. Leg or arm strength.
Two weeks ago, I may have been able to do this. Now no. Cancelled wheelchair transport and appt. Next time i will have an aide here.
I should have practiced yesterday when the aide was here. We did discuss what needed to be done but i did not dova practice run. If i had i would have known i could not succeed. Lesson learned.
I do keep a journal of changes. But when he goes-- from hospital bed to commode to recliner --i dont get a clear sense of what is failing.
I was supposed to take him out this am to see pulmonologist. Up at 6am for 8am wheelchair transport. I have been using the sling and hoyer for several weeks, many times per day. I needed to get a diaper on him and zip away pants. Could not do it. He cannot lay below 60 degrees. He has no core strength. Leg or arm strength.
Two weeks ago, I may have been able to do this. Now no. Cancelled wheelchair transport and appt. Next time i will have an aide here.
I should have practiced yesterday when the aide was here. We did discuss what needed to be done but i did not dova practice run. If i had i would have known i could not succeed. Lesson learned.
I do keep a journal of changes. But when he goes-- from hospital bed to commode to recliner --i dont get a clear sense of what is failing.