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  • Hi MupstateNY! Thanks for getting back to me. I hope you get this message. The ALS Clinic at Columbia Med NYC has gotten back to us. Appointment 2/13. This is 2 hours from us, but they seem the best group to work with. There is a lack of ALS info in my area: neurologists or primary docs. Best of luck to you with Synapticure, they look like an awesome program, but they don't take her insurance. :(
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    MupstateNY
    Do you think she might qualify for financial assistance?

    Right now Synapticure does not participate with ANY ins. in NY, but they're working on that.

    I hope you guys have a good experience at Columbia.
    B
    BarbaraB
    PALS definitely qualifies for financial assistance. We are working on Temp Disability now, then SSDI. Another person is handling that. I'm the medical person. Right now is covid #2 after the paxlovid. So besides digesting the diagnosis, she's suffering from covid. And a b-day tomorrow. Life is rough. I'm hoping she will see some light through all of this. Prayers. thanks.
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