1. Chincoteaguer

    Husband caregiver newly diagnosed

    Hello. My wife was diagnosed with ALS 12-20-17 after months of symptoms. She has been through so much in the last two years that the symptoms were overlooked by her doctors. She had surgery for breast cancer 01-2016; heavy chemo for 18 weeks; 33 radiation treatments; broken pelvis from fall...
  2. J

    Still here thanks to RCH4

    RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...
  3. ShiftKicker

    Excellent podcast about the Internet's role in spreading fake health news

    This podcast is not directly related to ALS/MND, however it covers a problem we all have encountered in one way or another. Posting here in Research News, as this is where most of the stem cell, drug and treatment discussions happen and where potential treatments/research gets posted. An...
  4. H

    Seeking Guidance (Again)

    I had sought guidance in June and received helpful feedback. I have an update and would appreciate any thoughts. I am a 65-year-old male. In mid-2016, I started to have swallowing issues with food occasionally stuck in my throat. I also started to have intermittent issues where my speech...
  5. N

    Another symptoms thread

    Hi folks, Another one for you. I'm 34, male, from U.K. I have read the recommended posts before putting this up and just wanted to get thoughts. Like seemingly the majority of those who are diagnosed with ALS, I had an innocuous bout of 'foot drop' in my right foot about 7 weeks ago. I felt...
  6. worrieddaughter77

    The cost of ALS in the long term

    Hello, I would like to figure out what is going to be the financial side of my dad's illness. My dad has a very good PPO insurance in Illinois, and so far all of his treatments were covered ( when they were approved by insurance. The insurance has only rejected his spine MRI once). What should...
  7. P

    Bulbar ALS - treatment options?

    Hi everyone, My mom was recently diagnosed with Bulbar onset ALS. We are desperately trying to find some alternative treatment options besides her regular medication. I read some previous threads with really good information but wanted to check again if anyone had recommendations regarding...
  8. B

    Best alternative treatments

    Hello all, forgive me for being a little lazy on this one...what are the best or most recommended treatments out there? I realize that cannabis, tudca b12 are covered although is there anything I am missing?
  9. H

    Seeking Guidance

    I have been seeing a top neurologist for several months. He has told me that I might have ALS, although I might also have some other MND or some form of neuropathy. I would appreciate any thoughtful reactions based on the following facts. I realize that any views expressed have limits, but at...
  10. Samwise Galenorn

    Alternative treatments for symptoms

    Greetings all, I'm new to this forum board. Query: Has anyone tried alternative treatments for your neurological symptoms? I'm just curious.