treatments

  1. S

    My brother has new symptoms - legs stop working for days at a time

    Hello all, For the last 4 months my brother has been having 6 weekly IVIG treatments to rule out possible MMN, and seemed to be responding - his bicep which had atrophied is growing and he's regained use of a finger that had stopped working. However in the last few weeks he's developed a new...
    • SBHarley
    • Thread
    • advice als back brother cals children clinical diagnosed financial financial help finger info mmn mnd mri paralysis stop working support symptom symptoms test tests treatments wheelchair young
    • Replies: 3
    • Forum: General discussion about ALS/MND
  2. S

    als or mmn?

    Hi, My brother was diagnosis with ALS last July and I've been posting here since then – he's young, has a young family, and is the main caregiver/child rearer of the family – his wife works full time. His little kids adore him. Its been very tragic seeing him unable to lift up his little girl...
    • SBHarley
    • Thread
    • als arm brother caregiver clonus diagnosed diagnosis family finger go away hope improvement ivig kids lift mmn mnd muscle questions symptoms treatments umn worried young
    • Replies: 3
    • Forum: Multifocal motor neuropathy
  3. S

    Medical marijuana

    Hi, I've been posting on here on and off since my brothers ALS diagnosis last July. He's only 40 and has a toddler and a new baby only 8 weeks old. We're all devastated and I've spent a lot of time researching treatments and therapies. His situation at the moment is that he's being given IVIG...
    • SBHarley
    • Thread
    • advice als arm cannabis clonus diagnosis finger ice info ivig marijuana medical medical marijuana mmn mnd muscle shaking support treatments umn weakness worried young
    • Replies: 21
    • Forum: General discussion about ALS/MND
  4. NothingButLove

    The level of cruelty is off the charts

    My wife's neurologist first suggested ALS in early October. I've been a basket case for the past couple of months. I don't know if your brain just runs out of "sadness juice" or it develops calluses but very recently I could feel the "fog" starting to lift. I guess you just can't hurt that bad...
    • NothingButLove
    • Thread
    • als back brain caregiver crying diagnosed early free hope lift neurologist newly diagnosed planning progression sad stress treatment treatments ventilator wanted
    • Replies: 17
    • Forum: Current caregivers
  5. B

    Triheptanoin

    This was posted on another ALS Forum: ------------------------------------------------------------------------------------------ Animal Study Suggests ALS Motor Neuron Loss May be Delayed with Triheptanoin September 20, 2016 Teresa Pais, PhDby Teresa Pais, PhD Because of increasing evidence...
    • bear1973
    • Thread
    • als balance clinical enzymes medical metabolism muscle onset stages supplement symptoms treatments
    • Replies: 0
    • Forum: Research and trials
  6. D

    Fecal Transplant

    Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
  7. T

    Voice Strengthening/Chronic Coughing

    Hi All :) Just wondering if anyone has had any luck with voice strengthening exercises? Also wondering if anyone else is experiencing chronic coughing (especially when speaking)? I've had a cough for about three years now, which all of my doctors believed was allergy related. After a year of...
  8. M

    ALS vs. Lyme's

    New to this forum and not sure where to post. Diagnosed with ALS back in July 2016 at Hopkins through EMG testing. I am experiencing muscle wasting in my hands and fasciculations. I have many Lyme's symptoms as well such as ringing in the ear, dental issues, burning in hand and feet, night...
    • MDsha
    • Thread
    • als back burning diagnosed do i have als emg fasciculations headaches lyme muscle muscle wasting neck pain night pain progression symptoms testing treatments
    • Replies: 6
    • Forum: Could this be ALS?
  9. Lkaibel

    Personal Accounts and Other on ALS

    In an odd "coincidence" (I wonder if there is such a thing, really) about one year before my husband showed a single symptom of ALS, I started to poke around and learn more about the disease. I was inspired in part by my friend Lynn's husband's Dx. Wow, I thought, someone else with this? A long...
    • Lkaibel
    • Thread
    • age als back cals children dad diagnosed friend goodbye health home care lonely medical reading relative running scared symptom treatments
    • Replies: 2
    • Forum: Off topic everything
  10. chally

    Labored breathing

    Last pulmonary testing I had the nurse tech allowed me to recline in my pwc to do test. Then after the test were done she gave me a breathing treatment w/ Albuterol in a nebulizer. Then did some of the test again to see if there was a change. When we left my cals noticed I was breathing better...
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