relative

  1. K

    Waiting on Neuro, scared.

    Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
  2. KarenNWendyn

    The empty seat

    A young man was very excited because he just won a ticket to the Super Bowl. His excitement lessened as he realized his seat was in the back of the stadium. As he searched the rows ahead of him for a better seat, he found an empty one right next to the field. He approached the man sitting next...
  3. Nikki J

    FALS and gene testing

    If you are or are likely to be FALS, have ALS and have not been gene tested please do so unless the family mutation has been identified It is becoming really important for practical reasons that your family members have that information. There are multiple mutations and there are some that...
  4. G

    fasciculations

    My brother died last year 10/31/2017, from ALS w/FTD he was 56. His ALS started in 2012 with a small fasciculation in his upper arm. At the time he was a airline pilot, he went to the Dr. and was told it was stress related. The FTD was more of a problem than the ALS and he eventually lost his...
  5. S

    I'm Hoping to help veterans with ALS

    My dad recently passed after a 2 year battle with ALS. I was his only relative, so by default became a caretaker. I spent hundreds of hours on VA benefits and my Dad's wish was for me to help others. I found PVA and DAV in my area to be of very limited help. They basically got me started and...
  6. R

    Think I have ALS and have some questions

    So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
  7. N

    Bit of a meltdown....kind of embarrassed

    I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
  8. A

    6 months in. Symptoms progressing. Doctors perplexed

    Hi all. Brief recap: Sept 2017 - ring finger twitch/tremor starts Oct 2017 - spread to other fingers Nov 2017 - unremarkable EMG Dec 2017- tremor spreads to other hand Feb 2018 - repeat EMG unremarkable in hands and arms, but “irregular” in face and leg...yet somehow simultaneously...
  9. F

    Odd Thoughts

    don't blame me, i simply copy and forward ! - The closest I ever got to a 4.0 in high school was my blood alcohol content. - Home is where you can say anything you want cause nobody listens to you. - Sex is hereditary; chances are if your parents didn't have it you won't either. - If women...
  10. M

    Update on symptoms

    Hi there, I'll try to keep the background brief: - Nov 2015 started twitching - Multiple clean EMGs through Aug 2016 - One fib detected in right quad in Aug 2016 (subsequently went away) - Had episode of ankle weakness in Oct 2016 - diagnosed as peroneal neuropathy via NCS/EMG (no fibs there...
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