relative

  1. S

    ALS diagnosed

    One of my relative is diagonised with ALS. Any curable treatment available today ? Please advise.
  2. L

    Hectic 5 weeks, hope it slows down

    With my wife's diagnosis 5 weeks ago, we have been going non stop and really hoping we don't have to keep up this pace. I'm still dealing with a broken foot so everything takes longer than I would like. First decision was to trade our fifth wheel trailer for a toy hauler version. Had to...
  3. rose

    A new book written by the relative of a PALS

    Hi everyone :) I'm posting this here in the General section, rather than in the PEG related area, because I want everyone to see it. Whether or not you, or your PALS have a tube, or plan to have a tube, I think it will interest you. The woman who wrote this recipe book lost her...
  4. Lkaibel

    Blogging No More

    I am not going to spend to much time and energy on this because it's not worth it, but just a brief vent here if you cafe to read further. Since nearly the day of Brian's Dx, I have done a Blog on Blogspot that was called "Life, Love & ALS". I have posted maybe twice a month. I think there has...
  5. J

    Is this likely to be early signs of ALS?

    Hi All, My names Jay, I am from the UK I am quite young & healthy, early 30s (which makes alot of people dismiss the possibility of ALS). My problems started at Xmas time 2016 although I believe this has been going on longer than this now I think back. I have read quite a bit on the forum & the...
  6. KimT

    The finances of ALS

    We all know how expensive this disease is and how it can devastate one financially. I thought it would be good to start a thread of tips for dealing with the money issues of this disease. I know when I first suspected I had ALS, I needed to decide whether I would take my pension in a lump sum...
  7. Lkaibel

    Personal Accounts and Other on ALS

    In an odd "coincidence" (I wonder if there is such a thing, really) about one year before my husband showed a single symptom of ALS, I started to poke around and learn more about the disease. I was inspired in part by my friend Lynn's husband's Dx. Wow, I thought, someone else with this? A long...
  8. R

    Doctor states a potential for ALS

    Hi, I find myself here because honestly, I am unsure if the doctor I saw was really offering me any good information. Not to criticize the doctor I saw, just that he was not my PCP who is on vacation. I just visited my doctors practice and saw the on-call physician. Not my normal PCP. I...
  9. C

    Great grandfather had it and now I have symptoms, seeking a little feedback

    Hi all, Thank you in advance for any replies or feedback. I know your time is precious and I sincerely appreciate any brief reply. I'm a 33 YO Caucasian man and my Great Grandfather died from ALS in his 70's. I've read the sticky and know it's unlikely I have it this young but here are my...
  10. KimT

    Breathing Exercises and CRAMPS in diaphragm

    I've been breath stacking but bought a gizmo on Amazon (very cheap) that measures your inspiratory capacity. It has % for age. I was excited because on my PFT I had pretty bad lung capacity. On this gizmo it was normal. I know it's probably off but I decided, at least, it would show relative...
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