Status
Not open for further replies.

Larrytbm

Distinguished member
Joined
May 13, 2017
Messages
102
Reason
Lost a loved one
Diagnosis
05/2017
Country
US
State
TX
City
Austin
With my wife's diagnosis 5 weeks ago, we have been going non stop and really hoping we don't have to keep up this pace. I'm still dealing with a broken foot so everything takes longer than I would like. First decision was to trade our fifth wheel trailer for a toy hauler version. Had to unload everything and store in our dining room. Got the new trailer less than 3 weeks ago but only partially loaded so far. A relative works for a big RV dealership and got us a good deal.

First priority at home is to re-model the bathroom and with just a single full bath that means using the RV shower during the remodel. In 2 weeks, linen closet moved, toilet, sink and shower stall removed. Concrete floor jackhammered, drain recessed and new concrete poured (now has to cure for 28 days). Electrical wiring and lighting changed. New shower faucet with ADA grab bar waiting on plumber to install next week. Then add blocking for grab bars followed by backer board and tile for the walls. Epoxy flooring already ordered. I have a wall mount beauty parlor sink for the new sink so I can wash my wife's hair, waiting to be installed. I also purchased a hinged ADA grab bar for the toilet (learned about these doing volunteer construction in England years ago). My goal is to at least have the shower and toilet operational within 4 weeks. The new sink is not as critical.

At the first Dr. visit, he wanted my wife to wear leg braces and a niece works for Hangers, so she directed us to the best store and tech in the Austin area.

We went to the 1st clinic on June 9th and from that, my wife now has a Trilogy, cough assist and suction machines. Dr. also recommends getting a PEG asap. Not a question about 'if' but more about 'when'. I'd like to get the bathroom finished first so I have more time free for cooking, cleaning, and monitoring her recovery. But we also want to take an RV trip in early August.

We also made the decision to get an EZ Lite PWC immediately, that August trip will be to higher altitudes.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
14,881
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Wow. My head is spinning. You are amazing.

Do try for the feeding tube ASAP. The recovery is easier the sooner it is done. The more compromised the breathing the harder the procedure. My sister waited far too long and what should have been a simple procedure almost killed her. My clinic ( Mass General) recommend a RIG ( done in radiology) over a PEG unless other medical issues dictate otherwise. There is a lot of discussion here on the subject
 

Larrytbm

Distinguished member
Joined
May 13, 2017
Messages
102
Reason
Lost a loved one
Diagnosis
05/2017
Country
US
State
TX
City
Austin
Update, plumbing done plus blocking, backerboard and tile. Grout is drying and grab bar next to toilet installed. Ceiling mounted shower curtain track on order. Tomorrow will start installing the other grab bars, shower faucet and floor prep. Will wait til after the 4th to install the epoxy floor. Hope to be done by July 10th.

On July 20th we have an appointment with the Dr. to schedule surgery for the PEG.
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,778
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
Larry - Wow you are a one man freight train. i can't believe you're doing all this with a broken foot. You are rockin' this. By vacation time in Aug, you're definitely going to need it.

Hugs,

Sue
 

Larrytbm

Distinguished member
Joined
May 13, 2017
Messages
102
Reason
Lost a loved one
Diagnosis
05/2017
Country
US
State
TX
City
Austin
Almost done and I'm feeling relieved. Glaze is done, then remove masking tape, hang shower curtain and re-install toilet.
 

Attachments

  • IMG_0465.jpg
    IMG_0465.jpg
    34.6 KB · Views: 181

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
741
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
Beautiful! Kudos to you on the take charge attitude!
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
15,976
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
looks fantastic!
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,778
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
Larry you are wonderful.

Hugs,

Sue
 
Status
Not open for further replies.
Top