relative

  1. K

    How Can They Tell On EMG It's ALS?

    My mom was about six months into it when she fell and broke her hip. She died and cheated it. I begain having problems just during this same time with dropped toe and walking problems. Can walk but not to far. Balance issues. I've had neuropathy years ago and problems with my legs for years it...
  2. B

    My husband sounds like he's drowning

    Hey y'all, My husband went fishin with my Dad this past weekend in Florida and my Dad said my husband sounds like he's drowning while he's sleeping...just so much junk in his throat and aspirating. And they had to come in from fishin at 2 o'clock everyday. Then he went to bed at 6. After he...
  3. C

    No feeding tube--what to expect?

    Let me preface this by saying I very much appreciate the discussion on the General Discussion part of the forum. I need some more graphic answers. My mother and her husband just got a definitive diagnosis from the ALS clinic in San Antonio, but we've (neurologist and our family) suspected it...
  4. P

    Hope

    I just wanted to say that we went to the ear, nose throat specialist today and the young nurse told us she is leaving her job here in Bend to move to NY to work for Project ALS because she is a relative to the sisters who started the project. She is very excited and said there are some very...
  5. B

    Communication devices?

    Hello, I am a relative to ALS. I have decided that this is the best way to describe my family now. Anyway, we live in another state from the ALS party and we feel a great need to be able to communicate. We would like to hear any and all advice on primary speaking devices vs computer with...
  6. MtPockets

    I broke footrest on wheelchair

    For the benefit of those who have never had to use a wheelchair or have a friend or relative who now has a wheelchair. I have a electric wheelchair, 3 months old, that I bent the foot rest because I did not know you were not suppose to put your weight on the thing. (Why don't wheelchair...
  7. A

    New to this forum... facing possible ALS diagnosis...

    Hello everyone. I just found this forum and have read a bit and noted that newcomers seemed welcomed. I am facing a possible diagnosis of ALS though have had trouble getting health care providers to even care about giving me any diagnosis or hope of finding the cause of my issues. I have...
  8. S

    Mother recently diagnosed w/ALS

    Hi Everyone, Newbie to this great site (although I have reviewed content here quite a bit) My mother (72 years young) has recently been diagnosed with ALS. My father was with her at the time of this diagnosis. I will be attending the follow-up meetings with her doctors. She is scheduled...
  9. I

    hello from Croatia, Europe!

    Hi all, I am here due to my relative, he is 36 years old, and he was diagnosed ALS six months ago. :( Till now he had problems with his hands legs, and voice. I am new in this “world” and I have been looking for information and found this site. Unfortunately it is so far away from Croatia, but...
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