rapid progression

  1. I

    "Early stages but progressing" he said

    My apologies if this is not the proper thread, however it is my first time coming out from behind the curtain. I have been following and learning about ALS since we first suspected the possibility months prior to receiving a diagnosis. My PAL was confirmed and reconfirmed 5 months ago. On...
    • initforever
    • Thread
    • ability als diagnosis early muscle progression rapid progression stages
    • Replies: 7
    • Forum: Newly diagnosed
  2. G

    Everything pointing to ALS

    Hi, I am not a worrier of individual symptoms so only posting because everything has built up so significantly and everything pointing to ALS. My biggest concern is the continuous rapid progression. I am 38 years old and based in Norway. Going on 10 months now with progressive symptoms...
    • Grieg
    • Thread
    • als als? atrophy autoimmune bed brain breathing clinical decline early eye family medical mri muscles problems progression rapid progression swallowing symptoms tests ultrasound vision vitamins worried
    • Replies: 22
    • Forum: Could this be ALS?
  3. P

    Ηere again...

    I wrote for first time here before 5 years.. My last post was at 2013 and is the following : So i'm here again cause my health situation is going from bad to worse. All these years i tried to move on in my life....I own a success store and i got married my beloved wife...But my health issues...
    • Passenger
    • Thread
    • atrophy back brain breathing clinical constipation depression exercise fatigue insomnia life mri muscle muscles night progression rapid progression sensitivity shortness of breath slurred speech speech swallowing swallowing issues symptoms tests tongue twitching weakness
    • Replies: 8
    • Forum: Could this be ALS?
  4. P

    Could not be??

    Hi all, I'm currently beside myself and would like your opinion please. I have a strong family history of mnd. My father, grand father, auntie and cousin all died with 9-12wks of diagnosis. Very rapid progression.... The last 2wks I've had lots of twitching in my body and predominantly in my...
    • Pookie
    • Thread
    • ability arm bed coping diagnosis early family family history father fingers kids lift mnd muscle neurologist night progression rapid progression tests twitching
    • Replies: 20
    • Forum: Could this be ALS?
  5. J

    Medical marijuana and als

    My father was recently diagnosed with als and has already had rapid progression, doctors giving him a year to live. I am a huge advocate for medical marijuana and have read many positive stories about its effects on als. I would like to know if anyone has any suggestions of dosing or specific...
  6. A

    And now it's done

    My dear husband lost his battle with ALS on Wednesday, May 18th. He had gone through a period of rapid progression but I wasn't expecting this to happen so soon. Now we are all trying to come to grips with how to live a life without him in it. I searched through here often looking for...
    • Autotelic
    • Thread
    • als ideas life progression rapid progression sad
    • Replies: 24
    • Forum: In memory of
  7. JennyC

    ALS Progression

    My mom was just diagnosed with ALS and I'm curious about progression. I know that it is very personal, some people live for 20 years and some are gone in less than a year but I have no idea what constitutes rapid progression or what is considered slow progression. In November her hand felt...
  8. M

    Rapid progression of friend

    I don't know all your abbreviations as I am new to this forum. And if I break any "rules" it is certainly not on purpose. I am a psychiatric RN and have become very close to another RN on my unit and her wife. In the course of 1 year, her wife has lost the ability to speak and swallow. She got a...
  9. Atsugi

    One perspective on handling CALS stress

    We CALS are stressed by conflicting expectations in our dual roles of spouse and caretaker. Perhaps some things would be easier emotionally if we were all professional medics, and we could see our PALS objectively as patients. We must keep our spirits up, even if our PALS are emotionally...
    • Atsugi
    • Thread
    • age cals caregiving data death kids life planning progression rapid progression stress
    • Replies: 34
    • Forum: Current caregivers
  10. affected

    Resource If you've just been diagnosed - what to do now?

    This diagnosis is worse than having a bucket of ice water tipped over your head. The detail of this sticky can be summarized by these steps which are not necessarily in the same order for everyone: 1. Absorb the shock 2. Find support systems 3. Tell people as appropriate 4. Put legal affairs in...
    • affected
    • Thread
    • anger diagnosed hours information manual muscles person with als possible a pwc rapid progression reading risk slow progression software supplements trip unknown young
    • Replies: 1
    • Forum: Resources
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